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Neuropathy: What works and what are scams?

Neuropathy | Last Active: 4 days ago | Replies (407)

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@antonintampfl2009

Yeah, people that has not experience the suffering, yes the suffering caused by PN can be very inconsiderate in their comments to those of us that are dealing with it. You are not alone, just live your life the best you can and I am sure that there are many shoulders to cry on in this group, that will encourage and help you deal with this terrible illness. But your friend’s response goes to show the reason why there is a lack of research dedicated to finding a cure for our benefit. Why dedicate time and money to try to find a cure to as you indicated by her response “it is nothing life threatening”? Is the PN foundation the entity that carries the banner for us or ? Can someone in this large group of fellow sufferers have an idea?

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Replies to "Yeah, people that has not experience the suffering, yes the suffering caused by PN can be..."

Thank you for your kind and empathetic reply. It was comforting. There are so many people who have PN that I don’t understand why there isn’t more attention devoted to it. There is a plethora of OTC remedies - which often fall short - so I would think that some company would see the lucrative value in developing a cure or more effective treatment. I was recently at a major medical center in my state, and the only option I was given was doubling the dose of my Gabapentin. Even on my current dose I am having trouble tolerating the side effects; however, I need better pain control and was hoping that at the very least, they could add something to my current treatment regimen rather than just more of the same. I showed him the four pages of alternative treatments from the PN Foundation site, and after glancing at it briefly, he said that none of it worked. Imagine my disappointment after putting so many hopes on this appointment that I waited such a long time for. Thank God for all of you.