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Relapsing polychondritis

Autoimmune Diseases | Last Active: Nov 8 8:34am | Replies (10)

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@slkanowitz

The lady docs office has several rheumatologists and nurse practitioners, which gives you more options and often sooner appointments if you see an NP. They are good and organized, responsive. The male is a solo practitioner, good but appointments can take longer if you choose that route. I would get both Mayo and private pathways going in parallel and see what you like the best. Mayo rheumatology tends to be more academic and may require you fit “textbook “ picture. Just my experience there, totally depends on the Dr you see.
You’re on the right path for the help you need!

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Replies to "The lady docs office has several rheumatologists and nurse practitioners, which gives you more options and..."

Thank you sm for this advice it truly helps me so much, I just realized you asked what my symptoms are, for the past year my issues are pain in chest, back & trachea with loss of voice & some hearing loss in right ear I have had multiple ear flareups I still get pain & lots of popping in my ears, I have been getting symptoms of pain in my chest for about 3 years & now I am being told it could be symptoms of RP all along I am taking 12.5 mg of methotrexate 1 x weekly & 20 mg of prednisone a day which I want to get off of asap, I was diagnosed by my ENT then he referred me to Rheumatologist & she isn’t experienced with RP I am pretty sure she just researched how to treat me on the spot by researching RP & that’s how she found out how to test me with these meds she has me on The prednisone really makes my GERD react & gives me severe heartburn so I went from sometimes taking a 10 mg if Fomotidine as needed which was very rare to 40mg a day & I have a lingering cough which my ENT prescribed Benzonatate two 100mg 3 x a day& Odansetron for nausea from the methotrexate I haven’t had any tests besides the scope from my ENT of my nose & trachea he said the inflammation in trachea is minimal but can’t help with the chest pain my Rheumatologist says I need to see a Pulmonary specialist