1. < Gynecologic Cancers

My sister has ovarian cancer that Mets to the liver. Very sick.

Posted by charolevista @charolevista, Nov 5 5:33am

My sister had ovarian cancer stage 3c that Mets to the liver and now the doctors see spots in the stomach and pelvic. Has anyone else experienced this? Malignant neoplasm of the ovary unspecified laterality ( HCC) and now show spots in the stomach and pelvic ? She is having chemotherapy treatments. Was on the Chemo drug , known as the Red Devil, was to strong , than
Placed on Caboplatin and was to strong , now she is receiving a lower dosage of this caboplatin. Had to have blood transfusion, almost died had lost 20 plus pounds in 2 weeks , won’t eat , drink, just sleep. . I am praying for my sister, just lost to siblings 1 month apart.

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MommaCandy | @mommacandy | Nov 6 8:54am
In reply to @gynosaur42 "First of all, I am not on the same road as either of you, @charolevista and..." + (show)
@gynosaur42

First of all, I am not on the same road as either of you, @charolevista and @mommacandy, so have nothing to offer in terms of advice or information about the path ahead. But I send my care and hope your way to each of you.
I am overwhelmed by the strength that each of you demonstrates in your loving dedication to and care for those around you who experience suffering, and the courageous, ongoing persistence in going on with life that each of you practices.

And I want to acknowledge how each of you is carrying on in these inspiring ways in the face of grief that would overwhelm the strongest of us. I am sincerely sorry for each of your losses. Your sister, @charolevista, and you, @mommacandy, are striving toward healing both your bodies and your hearts that ache due to loss. I, too, have recently lost a younger loved one to his own cancer. I recognize in myself how the shock of that loss and the deep emptiness and sadness take energy from me; something that is needed for staying on the path to healing cancer. And yet, pausing, even for a day or a week to be numb or cry or rest the heart in the face of loss, can maybe then allow for some more energy to come in that will help with turning toward what needs to be focused on next, whatever that is. I hope that each of you can take in whatever support the words of those of us here can offer, and can also receive care from those who surround you as you each continue to focus on what your hope and wisdom guides you toward.

With tender care and great hope,

Carla

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thank you...i don't really know what else to say at this point. its just very helpful to me to know i'm not alone on this journey and its ok to cry...people are often telling me things like "its been almost a month, aren't you moving on" or something similar and no i can't yet...i haven't even been able to take his razor off the sink where he laid it down that last time...people just don't understand...he was the best friend i've ever had, he was there no matter WHAT i needed, he was there...he literally offered his life for mine...you see and @charolevista might understand this because of her deep faith, but when we became friends he didn't even believe in God...that came along further in the cancer journey for the final convincing.... when he was diagnosed he was still stage one...they found it because of pancreatitis.. they had very high hopes for him...then when i was diagnosed and they offered me comfort care right off the bat and i said no we'll fight this he was cheering me on...what i didn't know was what he had prayed for...after his surgery he went in for radiation and i received a phone call from his doctor telling me his CA 19 numbers were up and while they didn't see anything on the CT scan they had just done for the radiation setup, he was sure it had spread, just didn't know where...well i didn't tell him that at the time so he had no way of knowing...then a couple days later i got a call from my doc telling me mine had dropped and the CT scan showed i was good enough for surgery so i told him and he said to me "well i guess God heard my prayer" to which my response was "What do you mean" and he told he me he had prayed and asked God to take him instead of me if he was going to take one of us because i still had people who needed me and he had no one (he had no surviving family). Well i was just like God don't work that way and he said well looks like he is going to this time...3 weeks later (i think it was) he had a mid radiation CT scan and tells me it had spread to deep in his liver where it wasn't able to even been biopsied... and he told me "well you're going to be ok, because God listened and i wouldn't have offered if i didn't mean it".. but he finished out the course of radiation and it just kept spreading but they told him they really couldn't do anything else at that point oral chemo might give him a few more months but it made him so sick he opted not to do it... All he ever asked of me was stay with him til he passed so he didn't die alone..in his words "I've died 4 times already, this time i just won't be coming back, so no i'm not afraid of dying" "(he was a soldier on front lines of many battles)
Believe me, i've struggled a LOT with this but when he was first diagnosed my only prayer for him was "God please don't take him home til he's ready to come home" and i feel like God honored that...he told several people as he neared the end he was ok and he'd see them again.. even the pastor of the church he had been attending for a couple of years where he lived before he completely gave his heart to the Lord... The pastor had came to see him on the last day with his wife and he roused a little and the pastor's wife said to him "I hear you're going home, will you wait at the river?" and the last clear sentence i heard him say was to us (we were lined up on the couch beside the bed) he looked at us and said "I'll see you again".. when he passed that night, i had started the song Go Rest High on the Mountain on my phone and laid down on the couch beside him and reached out to touch his arm to let him know i was still there.. when it got to the line "Go to heaven a shouting" he took his final breath and i feel like that was God's way of letting me know he was ok.. anyways sorry for long drawn out response...i just wanted to share just how much he meant to me... people often joked about us being married and even my husband would laugh and call him my second husband i knew so much of his medical stuff and i stayed with him so much...but he truly was the best friend a person could EVER ask for...we livestreamed his service last week and if anyone would like to watch it, send me a DM and i'll give you the link so you can...
Thank you all for listening, being here and caring...

REPLY
1 reply
sunflower88 | @sunflower88 | Nov 6 9:11am

I am sorry to hear about your sister. My spouse was taking Capecitabine 2000 mg twice a day with taking it every 2 weeks and then 1 week off for 6 months. Long story short, due to excessive diarrhea and losing 18 lbs in 3 weeks, Mayo physician team told him to stop so his guts could heal. He restarted the chemo last week (was off of it for 4 weeks) at a lower dosage of 1500 mg twice a day. So far he has tolerated it.

Your sister should be on a BRAT diet which stands for banana (high in potassium which she needs), rice, applesauce and toast. She needs to be hydrated so try Ginger ale. My spouse had to go into Mayo 3 times for IV with potassium before he stopped the chemo. I hope your sister has a good oncologist. Highly recommend Mayo.

REPLY
charolevista | @charolevista | Nov 6 9:58am

Thank you so much for sharing. I most definitely will tell her about the BRAT diet. And , yes she has a very great team. Her oncologist is a very informative doctor. My sister ( Sharon ) is very blessed to have the support system that she has . I live in a different city from her , but I travel 7 hours every 2 weeks to be with her . My mom
Is my very TOP Priority , with her pancreas cancer she chose not to have treatments are surgery, she is 89 years young , she just wanted to enjoy the life she has left. She didn’t want to be on any kind of treatments, are do any kind of surgeries. She is very STRONG . I guess that where I get my courage from . The only thing is , my sister Sharon won’t stop 🛑 smoking 🚬. The doctor has given her medication to help stop the craving. But I guest she feel it’s the only thing that she loves more than her life. It really break my heart, but those are her choices and she has to accept the consequences of her actions. I just pray she will let the cigarette 🚬 go!!! Please keep
Me and my family in prayer . Today is a very rough day for men, I can’t stop crying, it’s like I am finally having a breakdown, but I am listening to motivational speaker to encourage myself . Have a very beautiful blessed day and thanks so much for listening to me. 🙏🏽🙌🏽✝️✝️✝️💪🏽🌹 Charole’vista

REPLY
charolevista | @charolevista | Nov 6 10:09am
In reply to @mommacandy "thank you...i don't really know what else to say at this point. its just very helpful..." + (show)
@mommacandy

thank you...i don't really know what else to say at this point. its just very helpful to me to know i'm not alone on this journey and its ok to cry...people are often telling me things like "its been almost a month, aren't you moving on" or something similar and no i can't yet...i haven't even been able to take his razor off the sink where he laid it down that last time...people just don't understand...he was the best friend i've ever had, he was there no matter WHAT i needed, he was there...he literally offered his life for mine...you see and @charolevista might understand this because of her deep faith, but when we became friends he didn't even believe in God...that came along further in the cancer journey for the final convincing.... when he was diagnosed he was still stage one...they found it because of pancreatitis.. they had very high hopes for him...then when i was diagnosed and they offered me comfort care right off the bat and i said no we'll fight this he was cheering me on...what i didn't know was what he had prayed for...after his surgery he went in for radiation and i received a phone call from his doctor telling me his CA 19 numbers were up and while they didn't see anything on the CT scan they had just done for the radiation setup, he was sure it had spread, just didn't know where...well i didn't tell him that at the time so he had no way of knowing...then a couple days later i got a call from my doc telling me mine had dropped and the CT scan showed i was good enough for surgery so i told him and he said to me "well i guess God heard my prayer" to which my response was "What do you mean" and he told he me he had prayed and asked God to take him instead of me if he was going to take one of us because i still had people who needed me and he had no one (he had no surviving family). Well i was just like God don't work that way and he said well looks like he is going to this time...3 weeks later (i think it was) he had a mid radiation CT scan and tells me it had spread to deep in his liver where it wasn't able to even been biopsied... and he told me "well you're going to be ok, because God listened and i wouldn't have offered if i didn't mean it".. but he finished out the course of radiation and it just kept spreading but they told him they really couldn't do anything else at that point oral chemo might give him a few more months but it made him so sick he opted not to do it... All he ever asked of me was stay with him til he passed so he didn't die alone..in his words "I've died 4 times already, this time i just won't be coming back, so no i'm not afraid of dying" "(he was a soldier on front lines of many battles)
Believe me, i've struggled a LOT with this but when he was first diagnosed my only prayer for him was "God please don't take him home til he's ready to come home" and i feel like God honored that...he told several people as he neared the end he was ok and he'd see them again.. even the pastor of the church he had been attending for a couple of years where he lived before he completely gave his heart to the Lord... The pastor had came to see him on the last day with his wife and he roused a little and the pastor's wife said to him "I hear you're going home, will you wait at the river?" and the last clear sentence i heard him say was to us (we were lined up on the couch beside the bed) he looked at us and said "I'll see you again".. when he passed that night, i had started the song Go Rest High on the Mountain on my phone and laid down on the couch beside him and reached out to touch his arm to let him know i was still there.. when it got to the line "Go to heaven a shouting" he took his final breath and i feel like that was God's way of letting me know he was ok.. anyways sorry for long drawn out response...i just wanted to share just how much he meant to me... people often joked about us being married and even my husband would laugh and call him my second husband i knew so much of his medical stuff and i stayed with him so much...but he truly was the best friend a person could EVER ask for...we livestreamed his service last week and if anyone would like to watch it, send me a DM and i'll give you the link so you can...
Thank you all for listening, being here and caring...

Jump to this post

My condolences 💐 to you . Grief is not a disorder, a disease , are a sign of weakness. Grief is the price we paid for LOVE ❤️ It is LOVE, not reason, that is stronger than death. Those we LOVE don’t go away , they sit beside us everyday. What we have once enjoyed, we can never ever lose. I pray 🙏🏽 you find Peace . And your friend appreciate everything you did for him , and honor him by living life to it fullest. You seem like a very AMAZING beautiful person. I do believe in Angels 😇 You are Heavenly sent ❤️😇💐 Charole’vista 🤗🥰🙏🏽❤️

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