← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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@katgob

j0318- Are you in the "Be a Match" pool? I am not sure your background, but blood and its products have interested me for years. I donated blood first, then platelets for 25 years. My blood numbers trending down after my 2 years of cancer treatments caused me concern. Others who were treating me did not notice. I got someone in scheduling who got a dr to approve me getting a visit with a hematologist.
Meeting him once, had me heading to get a BMB and a diagnosis of MDS, I am Caucasian, so my match was found in a couple months. I have talked with many in my hematology office and blood services that more nationalities need to donate. Blood is specific. I talk to my nieces and nephews about donating blood. They have mixed heritage and could be a match someday to save someone's life.
I know they have more options for treatment. Telling my God you need a donor!!!!!! I so feel for you and hope a plan is found.
Enjoy your days. Live each a day at a time and make them full of love and joyful times.

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Replies to "j0318- Are you in the "Be a Match" pool? I am not sure your background, but..."

Hi Kat,

Thank you so much for the encouragement and your prayers - so very appreciated. And especially the reminder to live one day at a time - such a simple phrase for what can be challenging to do 🙂. Yes I have been talking to god each day asking for patience and acceptance for whatever is supposed to happen. Trying to be open to the path I am meant to follow here, not just what I think should happen. I worked for 40 years in a profession using logic to solve problems and design solutions, so it is a challenge to realize that this is not something I can easily solve with those skills.

I did get my welcome kit from NMDP so I’m in there as a recipient. My heritage is European (Slavic, German, other European). So hopefully if there is a good match found, it will be a donor who is healthy and willing to commit. I know there can be many obstacles between finding a match and the actual donor stem cell collection.

And I really appreciate your stating that there are also other options if this donor transplant is not the treatment. I have spent many hours researching other possible treatments at reputable medical center websites (MD Anderson, Sloan Kettering, Cleveland Clinic to name a few). I am preparing to discuss all of this with my primary hematologist next week as well. My doctor had mentioned some other possible treatments as well, but these would not address the bone marrow. I am concerned about the possibility of MDS as well since my bone marrow has not recovered. As mentioned before, my doctor did talk about a BMB in the near future if counts do not improve.

Thanks to you and Lori @loribmt again for all of your support and encouragement. Whatever happens in my journey, I know that you both are a true gift in my life. Much gratitude. 🙏🙏🙏
P.S. I write my responses in Notes on my tablet and then just copy them over to MCC. Just wanted to be careful that I am not a super fast typist to post both of these responses to you and Lori so quickly lol.