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Is anybody dealing with an angiosarcoma?
Sarcoma | Last Active: Nov 16 10:34am | Replies (63)Comment receiving replies
Hello @bigkevh20 and welcome to Mayo Connect. From your post, I see that you have had surgery for a tumor in the bladder that was found to be an angiosarcoma.
As this is your first post on Connect, please feel free to share a bit more about this diagnosis, such as how long ago was your surgery, and what other treatments have been recommended as a follow-up to surgery.
Most importantly, how are you doing now?
Replies to "Hello @bigkevh20 and welcome to Mayo Connect. From your post, I see that you have had..."
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Surgery was October 4th, PET scan on Oct 21st which showed Mets to lung, tail bone & left hip. Feeling better these last couple days. Still trying to find correct treatment for my. John’s Hopkins is working on that & I’m trying to get in MD A Anderson but Dr. Ravi hasn’t agreed to see me yet and insurance isn’t cooperating with their contracted rates so it looks like I’ll be paying out of pocket.