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Is anybody dealing with an angiosarcoma?

Sarcoma | Last Active: 5 hours ago | Replies (62)

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@hopeful33250

Hello @bigkevh20 and welcome to Mayo Connect. From your post, I see that you have had surgery for a tumor in the bladder that was found to be an angiosarcoma.

As this is your first post on Connect, please feel free to share a bit more about this diagnosis, such as how long ago was your surgery, and what other treatments have been recommended as a follow-up to surgery.

Most importantly, how are you doing now?

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Replies to "Hello @bigkevh20 and welcome to Mayo Connect. From your post, I see that you have had..."

Surgery was October 4th, PET scan on Oct 21st which showed Mets to lung, tail bone & left hip. Feeling better these last couple days. Still trying to find correct treatment for my. John’s Hopkins is working on that & I’m trying to get in MD A Anderson but Dr. Ravi hasn’t agreed to see me yet and insurance isn’t cooperating with their contracted rates so it looks like I’ll be paying out of pocket.