← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Discussion
Comment receiving replies
@loribmt

Oh golly, @j0318, this wait for a donor is torture for you and I’m so sorry nothing has been resolved for you yet. You’re so sweet to wish others well with their BMT while you’re patiently waiting for your chance. I’m sure your doctors are equally as frustrated because they want to have you return to a healthy, normal life again too!
There’s a global pool with something like 22 million donors so hopefully there’s some good news on that front with your appointment next week. Unrelated cord blood can be sometimes be an alternative for patients with a lack of donor. I personally know two adult acquaintances who have had successful bone marrow transplants with cord blood cells.
If a donor match isn’t forthcoming, has your doctor discussed the possibility of umbilical cord blood cells?

Jump to this post


Replies to "Oh golly, @j0318, this wait for a donor is torture for you and I’m so sorry..."

Thanks Lori for your support and encouragement - it means so much! Yes interesting you mention the cord blood transplant option. I had asked the BMT doctor about this possibility at the beginning of the donor process since I had read that GVHD can be milder and sometimes more easily controlled with cord blood transplants. Also there is not the uncertainty with finding, screening, and scheduling the donor’s time. He was not in favor of this as an option and at the time I didn’t ask for more explanation - I was still finishing my last two cycles of chemotherapy and feeling overwhelmed with all of the information.

I have since read that there can be slower engraftment and inconsistent screening to identify potential issues with cord blood, but I am honestly not sure if that is why the BMT doctor was not in favor of this. I may bring this up again with my primary hematologist at the visit next week to get a clearer understanding of why they do not favor this approach.

Thank you again for your support and encouragement. In this situation that no one would choose, connecting with you and Kat @katgob has been a wonderful gift. I will keep you posted as my journey continues. Many, many thanks. 🙏🙏🙏