Does anyone have EPI (Exocrine Pancreatic Insufficiency)?

I am sorry your EPI has had such a negative impact on your life! I am not aware of any link to Covid vaccines, but there’s so much we don’t know yet about the effects of both Coving infections and vaccination.
I am wondering if your lack of response to Creon is inadequate dosing. My understanding is that some people can require up to 15 caps a day: 3 with each meal and rwo with each snack. I am lucky in that 1 cap for lunch and dinner each controls my symptoms fairly well. Have you been checked for bile acid malabsorption? It’s possible that anoproblem coexists causing the diarrhea. It often occurs in people who have had gallbladder removed. The National pancreas foundation has good information on EPI and the dietary restrictions that help. I hope you get better control so your quality of life improves! It’s a learning process, sometimes lengthy, to manage this condition. A good dietitian might help as well. Hang in there and keep reading posts on EPI on this site. Experienced people with valuable information!

The Vital nutrient pancreatic enzymes do work.! Both my sister and I have EPI and take these successfully. Just be sure to check the back label for lipase dose of around 36500 units. Amazon has these. I take 2-3 a day with meals but you can take more if needed. Staying away from fried and fatty foods helps. It took me a long time to get this figured out. You will feel better! Hang in there. 😀

The Vital nutrient pancreatic enzymes do work.! Both my sister and I have EPI and take these successfully. Just be sure to check the back label for lipase dose of around 36500 units. Amazon has these. I take 2-3 a day with meals but you can take more if needed. Staying away from fried and fatty foods helps. It took me a long time to get this figured out. You will feel better! Hang in there. 😀

Ihave been diagnosed with both colitis and pancreatic insufficiency. Cannot figure out what I should snd should not eat. Any help would be appreciated

My understanding is that everyone differs when it comes to food they can tolerate or not tolerate but my doctor has suggested me to avoid anything which could exhaust my pancreas such as alcohol, smoking, all fried food, added sugars and non-complex carbs. I was also told that red meat is a possible carcinogen, especially toxic to pancreas so I try to build my diet around lean protein, veggies, legumes and low sugar fruits. Hope that helps.

Thank you, the info is helpful
. My problem is that I have been diagnosed with colitis and pancreatic insufficiency. Have been put on 1,400 calorie diet, fat under 30 grams, fiber under 24 grams, protein under 68 grams. Weight is 121 and falling. Way too thin. Can’t figure out how to calculate what I am eating for dinner.

Appreciate your shared info. I continue to have diarrhea, with very few solid stool movements. I’m still afraid to leave the house
Rebecca

Thank you, the info is helpful
. My problem is that I have been diagnosed with colitis and pancreatic insufficiency. Have been put on 1,400 calorie diet, fat under 30 grams, fiber under 24 grams, protein under 68 grams. Weight is 121 and falling. Way too thin. Can’t figure out how to calculate what I am eating for dinner.