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@dadcue

"So I can't be converted to a life-is-better-without-prednisone position till I have a reasonably good chance of that being true."
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The above is really the essence of it all. I wasn't able to resist increasing my prednisone dose either. The treatment for adrenal insufficiency is more prednisone although hydrocortisone is preferred. My endocrinologist said something to me as I was struggling with the idea of stopping prednisone after "decades" of use. She said I "could" and "should" restart prednisone for any reason if I felt the need.

My endocrinologist wouldn't speculate about what "would happen" if I stopped prednisone because she didn't know. She just wanted me to know about things that "could happen" so some safeguards were put in place.

I never converted to the idea that prednisone gave me my life back. I desperately wanted to be off prednisone because my "quality of life" was almost nil when I needed to take prednisone every day.

Prednisone was very hard on my body when I used it "long term" however, "short term" use wasn't so bad. Basically, all the research in the world confirms this. My rheumatologist still prescribes prednisone for trips when I'm away from home just in case a need arises.
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I'm aware of the warnings about the increased risk of serious infections when a person takes Actemra. It is important to weigh those risks before starting Actemra. For me, I weighed the risks against the following: "Infection Risk and Safety of Corticosteroid Use"
https://pmc.ncbi.nlm.nih.gov/articles/PMC4751577/#:~:text=Observational%20studies%20have%20consistently%20demonstrated,risk%20of%20serious%20bacterial%20infections.
My rheumatologist was very concerned about taking Prednisone in combination with any other medication that suppressed my immune system. Fortunately, I was able to taper off Prednisone relatively quickly after Actemra was initiated. There isn't any concern about being unable to stop Actemra abruptly when an infection occurs.

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Replies to ""So I can't be converted to a life-is-better-without-prednisone position till I have a reasonably good chance..."

I have heard about everyone trying to get off prednisone. I have been on and off prednisone for 30 + years and my rheumatologist just raised my P to 15 mg a day. I haven't felt better for two years. I am 78 yo and have normal bone density probably due to the amount of exercise I get. Please let me know what all the problems I am going to have? I was dx with PMR over 30 years ago. For about 15 years I would have yearly bouts of PMR and would take 10 mg of P and over 2 to three months taper to zero. When the PMR came more often I was on 2 mg P for about 10 years and that made it bearable then 5 mg P per day, 10 mg per day and just recently 15, which is the most I have ever been on and I feel it is over kill. Again, after been mainly on and off P what is going to happen to me? I feel great now.