← Return to Neuropathy: What works and what are scams?

Discussion

Neuropathy: What works and what are scams?

Neuropathy | Last Active: 1 day ago | Replies (374)

Comment receiving replies
@cecelia19

I can empathize with you and if it wasn’t for this community I don’t know what I would do. I confided in my best friend that I was profoundly depressed because of my PN pain and some evenings I will cry uncontrollably. She said that wasn’t normal to feel this depressed about my condition because “It’s nothing life threatening”, says the person who has never had PN. She also berated me for trying a topical THC/CBD product whom my doctors have had no trouble with me using. I feel like I’m on this island, adrift from the rest of humanity. The medical facility I went to recently had me set to meet virtually with a pain psychologist and they called a couple of days ago to cancel my appointment on the 19th of this month to three weeks later so addressing my mental health will have to wait a while longer. Your last two sentences brought me to tears. I pray every day not just for myself but for all of us that they can find a cure or universally effective treatment, very soon. I am so thankful for this forum where we can share ideas and our feelings with those who walk this painful road which others cannot understand.

Jump to this post


Replies to "I can empathize with you and if it wasn’t for this community I don’t know what..."

Yeah, people that has not experience the suffering, yes the suffering caused by PN can be very inconsiderate in their comments to those of us that are dealing with it. You are not alone, just live your life the best you can and I am sure that there are many shoulders to cry on in this group, that will encourage and help you deal with this terrible illness. But your friend’s response goes to show the reason why there is a lack of research dedicated to finding a cure for our benefit. Why dedicate time and money to try to find a cure to as you indicated by her response “it is nothing life threatening”? Is the PN foundation the entity that carries the banner for us or ? Can someone in this large group of fellow sufferers have an idea?

It is easy for those living in their tiny bubble of not having lived with pain to tell us that we are over-reacting. Or it's all in our head - no it's in my feet and legs! It is only a matter of time until life slaps them upside the head as it laughs and laughs. Then their minute will feel like a month....