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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 4 days ago | Replies (590)Comment receiving replies
Hi Lori. Thanks so much for checking in. Nothing as of yet. I have an appointment with my primary hematologist end of next week since they are still offering some alternative/additional treatments to BMT to prevent relapse if no donor is available. Not sure what is going to happen at this time. Still hopeful for a good outcome, whatever that might be. Also hoping to enjoy the holiday season this year since my cancer experience started on Thanksgiving last year.
So good to see the progress made by others as the days pass in the BMT group. My best wishes to everyone going thru this treatment.
Replies to "Hi Lori. Thanks so much for checking in. Nothing as of yet. I have an appointment..."
j0318- Are you in the "Be a Match" pool? I am not sure your background, but blood and its products have interested me for years. I donated blood first, then platelets for 25 years. My blood numbers trending down after my 2 years of cancer treatments caused me concern. Others who were treating me did not notice. I got someone in scheduling who got a dr to approve me getting a visit with a hematologist.
Meeting him once, had me heading to get a BMB and a diagnosis of MDS, I am Caucasian, so my match was found in a couple months. I have talked with many in my hematology office and blood services that more nationalities need to donate. Blood is specific. I talk to my nieces and nephews about donating blood. They have mixed heritage and could be a match someday to save someone's life.
I know they have more options for treatment. Telling my God you need a donor!!!!!! I so feel for you and hope a plan is found.
Enjoy your days. Live each a day at a time and make them full of love and joyful times.
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Oh golly, @j0318, this wait for a donor is torture for you and I’m so sorry nothing has been resolved for you yet. You’re so sweet to wish others well with their BMT while you’re patiently waiting for your chance. I’m sure your doctors are equally as frustrated because they want to have you return to a healthy, normal life again too!
There’s a global pool with something like 22 million donors so hopefully there’s some good news on that front with your appointment next week. Unrelated cord blood can be sometimes be an alternative for patients with a lack of donor. I personally know two adult acquaintances who have had successful bone marrow transplants with cord blood cells.
If a donor match isn’t forthcoming, has your doctor discussed the possibility of umbilical cord blood cells?