Dotatate lights only in liver, but report says metastatic to liver?

In reply to your questions, I had breast cancer 9 years ago, so periodically have scans to see if the disease has reappeared. A mass was seen in the liver from the scan and a biopsy was done identifying it as a metastatic neuroendocrine tumor not breast cancer. Thus began a series of additional tests including the Dodotate Pet CT to identify the origin. I have several tumors in the liver along with the mass. Since my tumor is not functioning and not producing hormones, I have no symptoms. So only reason it was identified was due to follow up from previous cancer. I am 77 years old. I assume that you were started on your treatment when your tumor was identified approx 2 years ago. Where is the doctor that is treating you? Have you seen any growth in your tumors? Is the expectation that you will continue with the current treatment indefinitely? I have given questions to my doctor to ask Mayo Clinic doctor how much growth would be a trigger to start treatment and the pro and con of watchful waiting vs starting treatment. A doctor that is a NETS specialist recently arrived in Atlanta that was working at MD Anderson and he recommended that I start octreotide now due to the grade 2 and KI-67 index of 6-8%. My breast cancer oncologist is reviewing my case with the Tumor Board this week and I suspect they will agree with the recommendation of starting treatment now. The MD Anderson doctor said he would consider surgical exploration if stable disease is observed for 6-12 months on therapy.

I'm being treated at IHC Oncology in Utah. My oncologist specializes in NETS and was educated at Vanderbilt. There has been no growth since I started the Somatuline Feb2023. I was told it usually works for 3 yrs but I've met people who have been on it longer. We haven't specifically discussed the next step but eventually maybe PRRT or another. I did have the primary NET removed from my SI 4/21/23 . It was an emergency operation as it was blocking my intestines. They took the 2.5cm tumor, 10in of SI, GB, and some lymphnodes that had cancer cells too. I too have innumerable nets in my liver so not likely they can cut them out. Thank you for sharing. Having more information is helpful. I hope the best for you. 🙏💚