← Return to Dotatate lights only in liver, but report says metastatic to liver?
DiscussionDotatate lights only in liver, but report says metastatic to liver?
Neuroendocrine Tumors (NETs) | Last Active: Nov 4 1:25pm | Replies (12)Comment receiving replies
Replies to "In reply to your questions, I had breast cancer 9 years ago, so periodically have scans..."
I'm being treated at IHC Oncology in Utah. My oncologist specializes in NETS and was educated at Vanderbilt. There has been no growth since I started the Somatuline Feb2023. I was told it usually works for 3 yrs but I've met people who have been on it longer. We haven't specifically discussed the next step but eventually maybe PRRT or another. I did have the primary NET removed from my SI 4/21/23 . It was an emergency operation as it was blocking my intestines. They took the 2.5cm tumor, 10in of SI, GB, and some lymphnodes that had cancer cells too. I too have innumerable nets in my liver so not likely they can cut them out. Thank you for sharing. Having more information is helpful. I hope the best for you. 🙏💚