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Agent Orange and Neurological Disorders

Brain & Nervous System | Last Active: Apr 21 9:39am | Replies (136)
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@djb0711

Thank you for sharing this. My husband is being seen by the neurology department at the VA. He has 9-12 ‘full body spasms’ daily. It doesn’t matter what he is doing and we never know when they are going to happen. He has been given a UStep rollator by the rehab department in order to help keep him from falling during a spasm. He has had full body and neck MRI’s which show no damage to the nerves around either of his lamenectomies - neck and lower back. He is on Parkinson’s medication yet after all of this and my questioning if he could have Parkinson’s due to daily AO exposure in 1968 the doctors refuse to acknowledge that AO could be the cause.

We would like to seek a second opinion on the outside and live in San Antonio. Does anyone have a referral? This has been going on since 2012 and as his care giver I need rest and as the patient he needs resolution. Thank you.

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John, Volunteer Mentor | @johnbishop | Jan 27, 2020

Hello @djb0711, welcome to Mayo Clinic Connect. It looks like the Texas VA has a special assistance program for veterans affected by agent orange. I didn't see any phone numbers but they have a Contact Us on the website that you may be able to get some referral advice or suggestions from.

Texas Department of Health, Bureau of Disease Control and Epidemiology, Texas Veterans Agent Orange Assistance Program:
-- https://legacy.lib.utexas.edu/taro/tslac/20029/tsl-20029.html

The VA also has some information on related diseases here:

Diseases related to Agent Orange
-- https://www.va.gov/disability/eligibility/hazardous-materials-exposure/agent-orange/related-diseases/

Have you thought about reaching out to a veterans organization for help? The Vietnam Veterans of America has an outreach program for agent orange that you might find helpful. Website link - https://vva.org/what-we-do/outreach-programs/agent-orange/. The website has a link to a self help guide that you can print off or view here:

Service-Connected Disability Compensation For Exposure To Agent Orange for Veterans and Their Families (PDF)
-- https://vva.org/wp-content/uploads/2014/12/AgentOrangeGuide.pdf

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