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Decipher Test

Prostate Cancer | Last Active: 5 days ago | Replies (19)

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@jc76

@hoover58
Your post: "When I asked the urologist at Mayo for the test he told me that the test is for people who have had a prostatectomy. I know that is not true."

I have been a patient of Mayo Jacksonville since 2006. This does not sound like Mayo at all. Decipher is NOT just for those who had prostatectomy. In fact most of the time Decipher test are done prior to a treatment being recommended. It gives a better determination of the aggressiveness of your cancer.

I have heart failure and my Mayo uroloigst wanted to do the biopsies in his office transrectal because of my heart failure. I had had many surgeries and procedures at Mayo under anethesia. did not agree and wanted it done with anesthesia and transperenial.

I had my heart failure doctor get involved and he informed urologist that my heart failure should not be an issue. Heck once a year I do a pulmonary stress test and have done 50 Sprint Triathlons. Urolgoist said okay I talked to your HF doctor and I will do under anesthesia and transperenial.

When I got my diagnosis of prostate cancer my Mayo urologist referred me to Mayo R/O. It is Mayo R/O that recommended the Dechipher test along with bone scan. What I have learned in my 77 years of life if you are not comfortable with a health care provider then change.

Mayo Jacksonville has a patient advocacy that you can use to help with your disagreement and will contact the doctors on your behalf. And yes even though I love Mayo Jacksonville I have used patient advocacy.

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Replies to "@hoover58 Your post: "When I asked the urologist at Mayo for the test he told me..."

thanks for the message @jc76. I just sent my radiation oncologist a message and asked him to order the test for me. I met with him earlier this year and I liked him a lot. I have sent 3 messages to the urologist over the past month but haven't gotten a response. We have a video meeting next week so I guess he is waiting until then to respond.

I'm trying very hard to not get labeled a "difficult patient" That has happened to me in the past and it never ends well for me. This is my forth urologist since Feb 2023.