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Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?
Bladder Cancer | Last Active: Nov 26 11:01am | Replies (25)Comment receiving replies
Thank you. I have had 3 tumors removed within 18 months. All non invasive low grade. After the second one was removed, urologist referred me to another urologist that administers Jelmyto. He didnt really encourage the treatment because of high stricture rate. The latest report has lowered the stricture rate to 12% with antegrade instillation, a percentage I can accept. Waiting for an appointment with the new urologist. Experiencing no pain or bleeding. Just can't see ablating tumors every six months. Thanks for tagging me!
Replies to "Thank you. I have had 3 tumors removed within 18 months. All non invasive low grade...."
My partner has NMIBC. He has had over 48 tumors ablated over the past 3 years. Nothing seems to work for him. BCG caused TB, non of the other chemotherapy seems to make any difference. So discouraged.
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@sim189
Did you proceed with Jelmyto? I am curious as I will be up to this procedure if any more recurrence happens. I am still on URS every 3 months but always says it is LG on Invasive Urothelial carcinoma. It is listed as malignant and I asked dr and he says it is malignant but low grade. The code is like that they use.
Like to hear from your experience for this JelMyto procedure if you have done.