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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 15 hours ago | Replies (7049)

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@greeneyedgirl721

Hello, I am Wendy, new to this platform. I've been managing Fibromyalgia for 24 years, doing my best to cope. However, a few years back, I started experiencing tailbone pain. Things deteriorated after a Medial Branch Block (MBB), a test to see if I was suitable for Radio Frequency Ablation (RFA). Post-MBB, the pain intensified, leading to severe inflammation that severely limited my mobility and daily activities. The extreme pain subsided after weeks, but I was left with persistent pain that made sitting for more than 30-40 minutes unbearable, as if sitting on jagged rocks. My glutes and sit bones suffered too, along with low back pain, muscle spasms, bursitis in both hips, heel/foot pain, arthritis, and Lymphedema. The RFA offered a slight improvement of 10-15%. It seems my Fibromyalgia is exacerbating the pain, indicating a flare-up lasting 5 months, which is atypical for me, except for one other instance after a critical illness.

For a year, I've engaged in physical therapy and home exercises, albeit limitedly. Cortisone injections in my sacrum facet joints brought no relief, just enough to keep me functional. My Spine and Pain doctor is now recommending a trial with an implanted neurostimulator for 7-10 days, following a successful psychological evaluation and a comprehensive thoracic MRI. I'm striving to remain optimistic and hopeful, despite the struggle to lead a normal life with compromised abilities to sit, stand, and walk.

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Replies to "Hello, I am Wendy, new to this platform. I've been managing Fibromyalgia for 24 years, doing..."

Hello. @reeneyed girl721. You are not alone in your painful circumstances. After a ski fall eight years ago, I also felt like I was sitting on "hockey pucks". Even through all my treatments, that feeling has never left me. Unfortunately, most pain docs do not have the time, compassion(as @philipsnowden has mentioned), and EMPATHY. My current pain doc has thirteen patient rooms. They are generally full when I go. Ten minutes is the usual visit time for me. How do you deal with patients' issues in ten minutes? After a year he still does not know my name or what caused my condition until he rushes in and scans his notes. Quite disheartening. I really wish you some kind of success in finding relief with the spinal cord stimulator. I had one that worked quite well for a couple of years. I am going for a consult this week with my neurosurgeon to see about having a newer, more sophisticated model implanted.

I am one of the lucky ones that the radio ablasion works for but my fibermyalgia still flares up in that area because I landed really hard on my coycx. Doc told me every bad injury will come back to haunt me with the fibermyalgia and I will feel the pain more intensely. He is right , my flare ups are in the areas that I have been in the areas that have been injured in the past. An ice pack on my butt helps me cope.