Deb, never fear the Transplant team is there. Starting to feel tired, cozy yourself and sleep. Nauseated at all, then call your team. I just saw the NP i say from Day 30 to over 100 days. Pauline said i look great and she is so happy my symptoms have not changed during this whole journey. Mostly healthy eating :-), exercise and water.
As Lori always said, having a young man's cells is a blessing. I feel like she does, which is energized and ready to handle life a day at a time.
Each day is new. Meant to unfold as the day does. Handling those potential side effects can then be acted on pronto. I would ask my NP occasionally if I am a needy patient. They would say, "not even close".
As a fun thing, modesty is just tossed to the wind on this journey. You share the shower with your portable IV friend, and personal things like bowel movements and urine are reviewed and necessary for review.
July 19, I went home to my home. That story is for another time, but GRATITUDE is what i feel. Sending the universe a message for your day, a day at a time to be better than the day before.