← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

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@lauratys

Finished Evenity Feb 2023. In April 2023 started Fosomax. I was told to take a couple months break as I could barely get on a pair of yoga pants as I was so uncomfortable. I felt brittle everywhere. A lot of muscle pain all over including arms and then wrists, hands…Was not going to do Reclast and have something in my body for a year after greatly reducing my mobility on Evenity. Too much of an unknown for me personally. Started Actonel Oct 2023. No DEXA since March 2023 which I self paid as I wanted results immediately after stopping Evenity. I think Actonel will be 3-5 years depending on DEXA next Fall. The PA I see told me no one she has prescribed Evenity for has had issues like I have had. Made me feel like I was crazy but luckily my daughter is a med professional and knows me and was encouraging as she knew it wasn’t in my head! I was glad to find this group and the 40% Mc Cormick sees effects in are making me feel not so much like a crazy person as well. I am not a complainer but Evenity has changed my flexibility for sure. Hoping to get it back with stretching which I’ve not done too much of until post Evenity and consistent exercise which I’ve always done. Best regards!

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Replies to "Finished Evenity Feb 2023. In April 2023 started Fosomax. I was told to take a couple..."

2lauratys doctors say that so often: that they haven't seen that side effect in anyone else. I think they need to train about this in medical school! I have heard of doctors saying this about side effects that are clearly listed as a common one on drugs.com or the pharmacy insert.

I am stiffer after 4 months of Evenity and stopped, for a few reasons, You might want to read about sclerostin and low levels in osteoarthritis. I have wondered too if bone spurs become more of a problem. Good luck!