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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Sep 27 7:19am | Replies (994)

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I have no symptoms or discomfort at all.

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Replies to "I have no symptoms or discomfort at all."

I have extensive tumours. No pain. It is surreal.

Hi
Just wanted to see how you’re feeling ? My husband has a chondrosacroma in the skull is non - resectable . Have they mentioned the medicine called Ivosidenib . Just wondering…. Take care 🙏