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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Sep 27 7:19am | Replies (994)

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @fionap and welcome to Mayo Connect. I see that you have been diagnosed with Chondro Sarcoma in the pelvis. Is this a new diagnosis for you? Were you having pain that led to this diagnosis?

I found some information on this rather rare disorder on the NIH website. Here is the link to that information,
https://www.cancer.gov/pediatric-adult-rare-tumor/rare-tumors/rare-bone-tumors/chondrosarcoma
Is there currently a treatment plan in place?

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Replies to "Hello @fionap and welcome to Mayo Connect. I see that you have been diagnosed with Chondro..."

Surgery in January. No pain.

I am undergoing dendritic cell therapy at Immunocine in Cancun for my metastasized solitary fibrous tumor. I was told incurable but this place is amazing. Had two vaccinations to date and feel great