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Anyone have Prostate Cancer Stage 4 with good results?
Prostate Cancer | Last Active: Dec 22, 2024 | Replies (77)Comment receiving replies
I know of many people that have had stage four and have lived for many years. I’ve been at stage four for about six years now and had prostate cancer for a total of 15 years.
Everyone is different. What is your Gleason score? What was your PSA when you were biopsied? Have you had a decipher score? Have you had a PSMA pet scan, what did it show? What year did you first find that you had prostate cancer? What is your PSA now?
What treatments have you had? What particular issues have shown that you have stage four? Do you have metastasis in multiple places? How old are you.
Many questions, but it will help figure out whether you have many years ahead of you, mostly due to the quality of prostate cancer treatments these days.
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My story of prostate cancer:
I retired in March of 2018. Was diagnosed with pc sometime in July of 2018 and had surgery to remove my prostate. I was a 4+4.
I had psa tests every 3 months and then in late 2019 my psa started rising. I have had all of my diagnoses/treatments at the Mayo Clinic in Arizona. In January of 2020 I started radiation treatments every weekday for 3 months. After this my psa was not detectable. I tested every 6 months and it stayed undetectable until January of 2024. Had mri and pet scan and cancer showed in my prostate region. So more radiation but only for 5 days and in different area than previous treatment. Then was sent to oncologist. I was given my first lupron shot in March of 2020 and also started taking arbiraterone tablets daily. The only side effects I had at this time was hot flashes, bothersome but easy to deal with. 6 months later my psa. Still undetected and had my 2nd Lupron injection on 9/30. A week after this injection I started feeling very fatigued and could not walk more than a 100 yards before my legs became super weak and wobbly. I have started physical therapy for about a month now 3 times a week as I read on this forum it might help. So far it has not and I can barely walk to my car from pt clinic. I feel like only half a man. My family always has to ask before we go somewhere “will you be able to walk that far” ? I always say yes even knowing I will be exhausted the whole time.
I will get my 3rd Lupron injection in March of 2025. I am concerned that my fatigue will even get worse after that. If it does not sure what I will do. (Hopefully not a wheelchair as I do not want to be a real burden on my family)
I see my oncologist in January 2025 to go over a bone density test I had last month. I will discuss my fatigue and weakness with her then and see if there’s
An alternative treatment option.
I am 70 and still beating this cancer but it is a rough road. I have read on hear even after the last Lupron injection it takes a longtime for testosterone levels to get back up which would elliviate the fatigue and weakness with.
Anyone else with a similar treatment course and similar side effects??