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Mac with or without Bronchiectais. Antibiotics number of sessions
MAC & Bronchiectasis | Last Active: Nov 4 3:35pm | Replies (12)Comment receiving replies
I was on the big 3 antibiotics for 20 months. I did not experience any side effects. Unfortunately, they did not get rid mac. There are two types of mac - nodular and cavitary. Nodular is the milder version of mac compared to cavitary. Men typically the cavitary version of mac. Mac is a very strange disease and impacts everybody differently. I was a patient at NJH then Mayo. My treatment experience was bittersweet. I'm glad I tried the antibiotics, but I was sad when I was told they didn't work.
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Yes, I can appreciate your words "I m glad I tried the antibiotics. but I was sad when I was told they didn't work."
As we know, we are all so different in our health, our abiliities etc. and in our personality as well.! All do actually come together in many matters of our lives.
You tried for sure, Mayo, NJH.
My journey so far, visits with five pulmonologists to find the one for me and as well my week at NJH (glad I went to NJH and for me it was like a medical vacation in Denver) and then my decision to see the BE specialist in Tyler, Tx, my primary pulmonologist. The last pulmonologist I visited with, this last week, to help with Tyler doctor and I in my journey. I really like and am so happy I finally found a local pulmonologist I can connect with, this last Edmond, OK pulmonologist, my secondary pulmonologist. He took time with me, was personable and answered all my questions.
From all that has been said to me I do not have cavitary and not sure I have nodular. Hopefully not either, BUT, I need to remember to put it on my list of questions for the doctor.
If you have time, how are you doing and what do you do for yourself to help with the BE/MAC etc.?
Thanks, Barbara