← Return to Mac with or without Bronchiectais. Antibiotics number of sessions

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@cindywayne236

My husband had mac. He started the meds 3 times. It made him so sick each time. He lived for 7 years with mac. They said life existed was 5 years. The last 2 year's were awful. He stayed so sick. The last 3 months he was completely bed riden. I lost him this February. I hope you have a great support system. Praying for you

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Replies to "My husband had mac. He started the meds 3 times. It made him so sick each..."

Cindy-
Thank you for your reply.
Losing family members is so very difficult and time is the only thing that helps, but much time is needed. I hope you are finding your way through the days. February was just like yesterday I would imagine.
Medications for anything are not pleasant and can change everything one way or another. Your husband must have been so frustrated.
That's somewhat of what I feel now. Frustrated. The frustration is due to the constant need to clear my throat of the substances that come up to the throat mucus, saliva, mucus plugs etc. It limits my social life and the freedom to just do things on the spur of the moment.
Overall my blood work comes out on the good side. Just need to drink more water with having to visit the bathroom day and night. Overall I get around just fine and also, overall, I feel fine and strong.
As I said I am weighing my decision as I tenatively prepare to take the meds. Azithromycin and the Ethambutol. The BE specialist doctor indicated no to all three. the big 3. Several pulmonologist recommended I start them and one did not. One of the doctors mentioned that if after a few months if I don't see improvement I could decide to come off them.
For me up to now, I have not had problems with the few medications I have taken in my 82 years so I am, somewhat. leaning towards at least trying to see how I and they work for me.
Your husbands experience was not pleasant and disappointing for you both.
I do want to hear the good and the not so good to fully understand what does happen for others. So THANKS, for sharing the journey you both had and please know I appreciated your post.
Barbara

Cindy, my heart breaks for your loss. (Irene5)