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What is it like to die with an aortic Aneurysm?

Aortic Aneurysms | Last Active: Nov 6 10:18am | Replies (25)

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@christine5

I was at work.I had my type a and b dissection in two thousand twelve. I originally had a pain in my back in that morning and it moved up my back as the morning went on. I dissected about 10 o'clock and lost consciousness very quickly. They did c pr on me but couldn't get AI. Vy line when the ambulance came, so they just got me to the hospital as fast as they could. And then they put me on ice all around my head and chest. And flew me to a bigger hospital where I spent 12 hours in surgery and 30 days in a coma...
I had nightmares in my coma.And I could hear things sometimes but not always and it was kinda scary. After I got to the hospital I didn't feel any more pain. I was only conscious at one point during my first hospital while they were doing an echo or a cat scan. I don't remember thirty one days of my stay in the bigger hospital. Just.
The nightmares and that I hallucinated when I first Woke up. It was horrible..

I still have Many aneurysms And dilations in my body.So my chance of dissecting another one is great.

God bless.

I think if I would have died when I dissected.I wouldn't have even known it.

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Replies to "I was at work.I had my type a and b dissection in two thousand twelve. I..."

I'm so sorry you experienced this. It is SO HELPFUL for you to share this experience though, since a lot of folks out here on the listserv underestimate just how horrible it is. I hallucinated too after they spiraled me up from the coma. I remember everything in the coma but it was complete nightmare. I would doze off and they wake up to a solid blazing white light followed by spinning psychedelic patterns and all I could hear was screaming, screeching tires, terrible traumatizing sounds. I wanted to die so badly but I did not know where I was and assume I was in H*ll or worse. So, it is really helpful to hear about your experience. Back in 2012-2015 time frame when we both had our dissections, there was a massive amount of opioids used for sedation. When I left UCSD I left the hospital NOT KNOWING I was addicted to opiods and had never ever taken one before. I don't drink or take any drugs of any kind, so I spent more than two months going through withdrawals and thinking it was the effects of two open heart surgeries. I think there should be a federal law that requires hospitals who give people opiods of any kind to give a complete written disclosure of what opioids were administered and the precise amounts. I stopped taking everything cold turkey when I left the hospital. It wasn't until a year later when I read every page of my 1,300 medical records that I realized I had been given a massive amount of different opioids when I was in surgery and in the 3-week coma. It would have been invaluable to my wife and kids to know why Dad was in bed all day, puking, not eating, and hallucinating because he had been unwittingly addicted to opiods. I went through almost 2.5 months of withdrawal without even know I had been given opioids. When I was discharged they gave me 240 Oxycodone which I promptly refused since I do not take drugs and assumed I could take Tylenol if the pain was too intense. Boy was I wrong. I hallucinated, had the shakes, had the sh*ts, puked constantly, couldn;t eat since everything tasted like metal, lost 60 lbs, was depressed, was in a complete opioid fog. So, I learned just how bad addicts have it when they detox cold turkey. Now, I understand that they saved my life, but they failed to tell me that I was going home to an opiod addiction with my little kids 3, 6, and 9 years old at home. Think Trainspotting (the movie). Here a list of exactly what they gave me when I was unconscious and never once disclosed to me after I was discharged and sent home in a wheelchair. I read all of my records a year after the surgery and found out:

Dilaudid
Haldol
Fentanyl
Remifentanil
Midazolam
Morphine
Naloxone (14 doses)
Narcotic Cocktail Drip (Google this)
Oxycodone
Roxicodone
Seroquel
Trazodone

Don't ignore your doctors if they tell you you need surgery! Peace. Here's the rest of the drugs they gave me (just in case you have read this far)

Acetaminophen
Albumin
Albumin Bolus

Albumin Human
Aminocaproic Acid
Amlodipine
Antacid
Anticholinergic
Aspirin
Atorvastatin
Aztreonam
Calcium Gluconate
Cardene
Carvedilol
Cryoplegia
Dexmedetomidine
Dextrose
Dextrose-Sodium Chloride
Docusate Sodium
Dopamine
Electrolytes
Epinephrine
Esmolol
Famotidine
Furosemide
Glucagon
Glucagon Injectable
Glucose
Glucose Chewable
Glucose Oral Gel
H2 Blocker
Heparin
Hydralazine
Insulin
Insulin Glargine
Insulin Lispro
Labetalol
Lactated Ringers
Lidocaine
Lidocaine Viscous
Magnesium Sulfate
Metoprolol Tartrate
Neosynephrine
Micardis
Nitroglycerin
Nitroglycerin Paste
Nitroprusside
Norepinephrine
Ondansetron
Oxygen
Phenylephrine
Phosphorus
Potassium Chloride
Propofol
Packed Red Blood Cells
Reglan
Rocuronium
Saline
Senna
Simvastatin
Sodium Chloride
Vancomycin
Vasopressin

So wonderful you survived it 🙏 yes anxiety and worry we have to live with unfortunately. Hugs of strength💗
I have fibromuscular dysplasia where you get aneurysms and strokes, had a TIA. I live alone and therefore afraid that I won't have time to raise the alarm myself and that my pets will be alone for a long time. There is nothing to be done, but you certainly get worried.