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Agent Orange and Neurological Disorders
Brain & Nervous System | Last Active: Apr 21 9:39am | Replies (136)Comment receiving replies
I'm glad that you are " passionate it about it" there isn't that many people to really lobby for the needs of Viet Nam Vets- there in far more ( and I'm glad) for the Vets who served in the Iraq war( which I did as well) but most of om health issues are from being shot and injured in Viet Nam-as well as the agent orange issues of Parkinson's, The heart attack I had just over 3 months ago- and much more I won't bother folks with. It's not about just me- it's about countless VN-Vets, who have been left behind in ways the general public never sees. AS far as Agent Orange- let me share of couple of resources, 1. Check out the web site at : US Dept of Veterans Affairs, and 2. Military times. com- they both list the various health problems that been approved by DOD as AO related and the disability that goes with it. Also you can call the local VA " Viet Nam Agent orange line at : 602-277-5555, ext: 6749. Ask for William, he is in charge of the Viet Nam Agent Orange Registry. He can answer most all your questions and also who ever the Vet is-who served in country, he can help with getting you the certified Doc: you need for disability, plus put you on the approved list to see any doctor that would relate to ones key injury or disease caused by AO. Once to have been diagnosed with any one(1) disease-deemed to be caused by AO, all other diseases that is on the list automaticly adds to your claim of disability. But let say I'm not the authority on the whole issue- this is what I have learned with my own cases and how they were approved and how I was given the help I needed and still need. Hope this helps someone seeking and hurting- you also have my prays for you and your family. JJ.
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I was in Vietnam for 16 months so I was exposed to Dioxin and I was at Camp LeJeune, NC so I was exposed to the contaminated water at that Marine base. I was diagnosed with MDS/MPN-RS-T so I was awarded 100% disability for that because MDS is one of the presumptive diseases of the Camp LeJeune contaminated water legislation. The problem is I was already at 240% (100% combined) due to several combat related injuries. I have Axonal Neuropathy so in October 2020 I went to Weill Cornell Hospital in Manhattan and had a Exome Sequencing and Whole Exome test done. Those tests look at over 20,000 genes for mutations and measure the protein levels of those genes. Still waiting for the test results. The lab blames COVID for the delay. I just want a clear diagnosis of which form of Axonal Neuropathy I have and Is it treatable or not. Some forms of Axonal Neuropathy can be treated with drugs or infusions. Others cannot. I had a INVITAE Saliva test done and the results indicated I an a SMA carrier and I had GAN. The SMA carrier thing was a surprise so my kids all got tested to make sure they didn’t inherit that gene mutation from me. So far, my three daughters are negatives. My son hasn’t been tested yet. The GAN thing is obviously not inherited because if I was born with GAN I would have been dead within a year or so. So it’s an acquired mutation. I suspect being exposed to dioxin and/or the contaminated water at Camp LeJeune caused the mutation but proving that is probably impossible.