← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

Discussion
Comment receiving replies
@sunny65

Hi @windyshores . Just wanted to get back to you since a lot different things happened in the past three days. First my diagnosis changed again (!!!). I don’t have flat back but swayback. Which is bad too. My pain level increased. I did DEXA test after 5 months using Evenity. It’s actually worse. Spine -5.1. It was -4.8. Not sure what’s happening. The doctor telling me that my previous test was last year September but I didn’t started Evenity until July of this year.( I don’t know where I was when I started) I had to deal with serious family matters and didn’t have time to think about myself. Doctor insists to finish Evenity and then go on Tymlos.Between making a decision about quitting therapy which didn’t produce improvement and medication. I am not 100 percent convinced that Evenity giving me pain. I have fractures throughout 4 discs in my vertebrae. I don’t have any luxury to go and find totally new doctor and start it over. The pain prevents me from driving or doing much around the house. I still tried walking today with my husband and cried from pain. Tramadol gives me headaches. I try to take just 2 a day. This is obviously not enough. I am going to see new therapist next week.Not sure how much treatment he can give it to me because my osteoporosis is so severe. It’s hard to understand how my CTX went from 647 to 345 but density numbers going other way. I been taking calcium in a pill and mostly food. The 1 cup of Almond milk supposed to have 480 mg. I drink one and have one with my oatmeal and take 500 mg in a pill. Also been taking vitamin D 3000 mg. I am not sure what I am doing wrong. I don’t have a real doctor who understands and listens. I am in my mid sixties and my head is spinning from all this crazy things that happening to me.

Jump to this post


Replies to "Hi @windyshores . Just wanted to get back to you since a lot different things happened..."

@sunny65 so sorry about your bad news. The only thing to consider is that a loss of -.3 is supposedly not statistically significant. I have a chart of my DEXA's and they do jump around. I was told a change of -.5 was significant. That said, what is definitely significant is that it did not improve!

So your doctor is thinking you might have been lower than -5.1 when you started in July since bone loss might have occurred after the September -4.8 DEXA? So you might have gained or held steady, after all?

I don't know if there are studies on Tymlos after Evenity but they have different mechanisms so maybe your doctor can explain if it is a good idea of not. My doctor said it might take a month or two for "mineralization" from Evenity to happen. I wonder if you could switch to Tymlos a month after the Evenity you took last? Evenity is mainly anti-resorptive at this point in your treatment.

I wish you could have a second opinion but understand how difficult it is. At -5.1 you really need help. Can you tell your doctor that you want to try Tymlos asap? To strengthen your argument you could do a phone consult with Keith McCormick (Osteonaturals) but there it takes awhile to get an appointment.

Ugh and hugs!