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Paraganglioma

Neuroendocrine Tumors (NETs) | Last Active: Nov 5 5:45am | Replies (18)

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@wilhelm

I'm in upper New York state, and the surgeon is at Albany Medical Center, a teaching and research hospital. His specialty is endocrine and robotic surgery, and has dealt with the tumor being part of the adrenal gland (don't remember the name for that), but has not dealt with the tumor outside of the gland. As I said earlier, if everyone shies away from a doc because he has never done it before, there wouldn't be many experienced ones! As far as a second opinion, the only outcome I could see there is, operate or not? This thing is affecting my health in several ways, and is slowly getting more pronounced. I wrote here not so much because I'm worried, I saw the original question and figured I would give my story.

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Replies to "I'm in upper New York state, and the surgeon is at Albany Medical Center, a teaching..."

I appreciate you sharing your story, @wilhelm. Do you have a surgery date already scheduled?

Will you continue to post and let me know how you are doing?