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Intracranial Hypotension or Paroxysmal hemicrania

Brain & Nervous System | Last Active: Nov 1 3:30pm | Replies (2)
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@lisalucier

Hi, @josieglow - glad you've joined Mayo Clinic Connect and made a first post. It seems like you are dealing with quite a bit of pain and your quality of life is not what you'd want right now.

-One discussion on Mayo Clinic Connect that might be useful for you is:
CSF leak in spine
https://connect.mayoclinic.org/discussion/csf-leak-in-spine/
-Here's a comment in a thread about migraines that discusses paroxysmal hemicrania:
https://connect.mayoclinic.org/comment/993642/
Going to a neurologist next sounds wise. Do you have specific questions you want to ask the neurologist when you get to your appointment?

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Replies to "Hi, @josieglow - glad you've joined Mayo Clinic Connect and made a first post. It seems..."
josieglow | @josieglow | Nov 1 3:30pm

HI Lisa
Thanks for your reply to my post.
I have had a look at the threads in the links you provided, which provided some useful information.
I will ask neurologist about CT Myelogram and DSM.
Other than that, I would like to know 'what's going on, and what are the potential options of management'. Pretty basic questions, but the answer I suspect might not be so easy to answer.
One thing I don't want is to have to use drugs ongoing without knowing what I'm dealing with (there is always a trade off with health and long-term medication)
The thought of having these symptoms for years as was mentioned by other people suffering with a similar thing (whom I have much sympathy for) is very daunting.

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