All the surgeons I have seen have told me to wait and see. It seems crazy to me since it’s near my optic nerve on the right, pushing on my pituitary gland and around my carotid artery. Maybe it’s the size that they feel like they have time but I don’t see how. This surgery sounds terrifying. I’ve had some drs at Mayo tell me the location is considered no man’s land. Other surgeons say they could get some of it but not all. It would require removing some bone as well.

Losing my vision has been so scary and upsetting. The worse is being told not sure if the treatment will work.
I don’t know if they are hesitant for surgery because of the unknowns with my sight or because I’ve had two surgeries already this year. Drs keep saying I’m not a sick person but it feels like it cause my entire life has changed in 4 short months. I am unable to drive, my mom has moved in to help me with my 3 young kids (5,7,9). I’ve been referred to Braille institute to learn how to manage with my low vision.