Connect
← Return to enormous sputum clearance all the time
Discussion
enormous sputum clearance all the time
MAC & Bronchiectasis | Last Active: Nov 1 9:23am | Replies (33)Comment receiving replies
Hi Sharon, I think you’re new to Connect. There is a wonderful group and I think you’ll find helpful info here.
I have bronchiectasis and was thought to have MAC based on CT’s, but cultures were negative. Therefore, I have no experience with the meds used. I’m replying to bump the thread because many here have been treated and the post you replied to is old. Few questions for you:
which organism grew out of your cultures? Do you have cavities on Ct?
Would you share a bit more about the problems you’re experiencing and how long you’ve been on them?. Some people seem to tolerate them well and others cut back.
I’ll search for some threads that might help you.
Replies to "Hi Sharon, I think you’re new to Connect. There is a wonderful group and I think..."
Connect
Hello! Thank you so much for responding, that’s so nice of you. I have had MAC for 5 years but just started treatment 1 month ago. Seem to be tolerating all except Rifampin causing terrible stomach issues. I take probiotics in the morning and am on the Big 3 3 days per week. I take the Azitramycin with food for lunch, take rifampin 1 hour before dinner and the Ethambutol after dinner.
Generally am running to the bathroom about 1-2 hrs after taking Rifampin so not sure what i’m doing wrong. As far as the bronchectasis i’ve had that for many years. i do not have any symptoms from either. My sputum culture had MAC all over it so pretty easy diagnosis, My ID and pulmonologist have been watching it for 5 years wax and wane however i got Covid in December last year and my CT scan in May came back yucky. Some cavitary issues, tree in bud etc. I never cough or have trouble breathing etc. Just trying to get rid of this thing and keep my lungs as healthy as possible!