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Lichen Sclerosus - Now need cystoscopy - Anyone else?
Autoimmune Diseases | Last Active: 7 hours ago | Replies (26)Comment receiving replies
Hello all. I went to the appointment for my cystoscopy today. The doctor took one look and said "I don't see how you're able to pee at all." We'll need to do surgery and "open you up." Now I continue to struggle and WAIT!!. I hate that I've had to wait two weeks since my urodynamic test. If only he was able to step in and take a quick look at that time. I feel the surgery could already be behind me.
Also got a call that a biopsy on my hand is squamous and will require traveling 90 miles to get Moes surgery. We have no choice but to keep moving.
The best to everyone.
Replies to "Hello all. I went to the appointment for my cystoscopy today. The doctor took one look..."
I also have Lichen and had a biopsy down there this past summer. I use the Clobetsol creme once a week. Don’t worry about the Mohs surgery, I’ve had it twice on my nose and it wasn’t as bad as I thought. At age 73 it seems like something always wrong. I was also DX with autoimmune PBC with advanced liver cirrhosis 3 years ago. Best of luck with your surgeries 💚
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@fdixon63 did the doctor say what he was going to do when he “opened you up”?
On the positive side, you will get anaesthesia so you definitely will not feel anything.