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Post covid neuropathy/bfs?

Neuropathy | Last Active: Nov 5 12:16pm | Replies (60)

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@robindancer5678

Aarp’s newsletter did a great article on long Covid and how one can have it even if they had a mild case of Covid. I am very grateful that in my trips to about 10 specialists nobody dismissed my weird symptoms. Although none of them was able to come up with a definitive diagnosis, pretty much all of them said that long Covid behaves the way it wants to behave, and differently in different people. The best any of them was able to come up with was that my symptoms behave something like fibromyalgia or small fiber neuropathy, or we could call it long Covid, although my symptoms don’t meet the diagnostic criteria for either fibromyalgia or small fiber neuropathy. I’m fine with that. We’ll just deal with symptoms as they come up.

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Replies to "Aarp’s newsletter did a great article on long Covid and how one can have it even..."

Yes, and when symptoms never leave and new ones crop up and a new groups of docs is added and none of the ones being seen talk w/ each other.. it's frustrating. I had such a horrible night Sun. and through today, Tues., that neither doc to whom I wrote responded. The neuropathy was burning; far more intense pain in my right leg, and more. It's just exhausting to keep explaining over and over. I'm learning to live w/ the tinnitus that resulted from COVID - even the hearing loss but neither hurts; they are annoying, whereas the neuropathy hurts horribly.