1. < Neuroendocrine Tumors (NETs)

Anyone have side effects after Lanreotide injection?

Posted by genovaldi @genovaldi, Jul 3 9:07am

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and this would happen before the injection and now it's after. I did tell my doc and now I TAKE octreotide as needed. Anyone else have this?

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marciamiller | @marciamiller | Oct 30 8:51pm
In reply to @penynah "One of the nice things about trying a new medication is that if it doesn't make..." + (show)
@penynah

One of the nice things about trying a new medication is that if it doesn't make you happy, you can discontinue it. I have stopped other medications due to side effects, but I'm doing well with the Lanreotide. My side effects are mild. (Nothing that stops me from doing my job)
Blessings!

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Has your hair thinned? Has that been an issue? Thanks!

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penynah | @penynah | Oct 31 11:29am
In reply to @marciamiller "Has your hair thinned? Has that been an issue? Thanks!" + (show)
@marciamiller

Has your hair thinned? Has that been an issue? Thanks!

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Yes, I have hair thinning. My curly gray hair measures a few inches below my shoulders. The curls help mask how thin it is. But, I've also been on synthroid/levothyroxine (which also causes hair thinning) for 21 years. My hair used to be too thick to even pull 1/2 of it into a barrette. Now all of it fits easily. so I've lost about half my hair to synthroid.
Since starting Lanreotide 6 months ago, I have seen an increase in hair loss. I warned my hubby that between the 2 meds, I'm going to go bald like him! I don't know where my stress levels would be without God's promises in Revelation 21:4.
But the Lanreotide hasn't caused any loss of energy, nausea, or body aches. I can wear a cute hat or a wig. It doesn't affect how my body feels! I admit though. it does affect how I feel about my body- but then again, so did the breast cancer lumpectomy that left me with a golfer's divot on my right breast! Lol.

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2 replies
dbamos1945 | @dbamos1945 | Oct 31 8:20pm
In reply to @penynah "Yes, I have hair thinning. My curly gray hair measures a few inches below my shoulders...." + (show)
@penynah

Yes, I have hair thinning. My curly gray hair measures a few inches below my shoulders. The curls help mask how thin it is. But, I've also been on synthroid/levothyroxine (which also causes hair thinning) for 21 years. My hair used to be too thick to even pull 1/2 of it into a barrette. Now all of it fits easily. so I've lost about half my hair to synthroid.
Since starting Lanreotide 6 months ago, I have seen an increase in hair loss. I warned my hubby that between the 2 meds, I'm going to go bald like him! I don't know where my stress levels would be without God's promises in Revelation 21:4.
But the Lanreotide hasn't caused any loss of energy, nausea, or body aches. I can wear a cute hat or a wig. It doesn't affect how my body feels! I admit though. it does affect how I feel about my body- but then again, so did the breast cancer lumpectomy that left me with a golfer's divot on my right breast! Lol.

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marciamiller | @marciamiller | Nov 1 8:24pm
In reply to @penynah "Yes, I have hair thinning. My curly gray hair measures a few inches below my shoulders...." + (show)
@penynah

Yes, I have hair thinning. My curly gray hair measures a few inches below my shoulders. The curls help mask how thin it is. But, I've also been on synthroid/levothyroxine (which also causes hair thinning) for 21 years. My hair used to be too thick to even pull 1/2 of it into a barrette. Now all of it fits easily. so I've lost about half my hair to synthroid.
Since starting Lanreotide 6 months ago, I have seen an increase in hair loss. I warned my hubby that between the 2 meds, I'm going to go bald like him! I don't know where my stress levels would be without God's promises in Revelation 21:4.
But the Lanreotide hasn't caused any loss of energy, nausea, or body aches. I can wear a cute hat or a wig. It doesn't affect how my body feels! I admit though. it does affect how I feel about my body- but then again, so did the breast cancer lumpectomy that left me with a golfer's divot on my right breast! Lol.

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Thanks for the info information and Cheers to good health!

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hollywood817 | @hollywood817 | Nov 2 6:47am

I’ve had almost 30 Lanreotide injections and have two side effects…which have dissipated overtime…bump at site of injection and fatigue. The fatigue would last for a day or two but now I hardly notice it. Wishing you a successful journey. Stay positive!

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