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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 13 minutes ago | Replies (202)

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@citychica

Hi there, it’s Naomi. It’s been a journey. My meningioma was found when I started losing my vision however, the doctors don’t believe the meningioma is causing my vision loss and have diagnosed me with autoimmune retinopathy as of right now the meningioma has taken a backseat as we wait and watch to see if it grows. Doctors are trying to stop the vision loss with immune suppressant therapy. I was in the hospital in August to get steroids. And have steroid implants in both my eyes now to stop the conditions that are causing the loss of vision. It’s been quick in that I am considered legally blind now. I am able to see centrally, but my peripheral/field vision is greatly impaired. we were told there’s a rare chance, the meningioma could be causing an auto immune response. Doctors aren’t eager to have surgery since I don’t have other symptoms. I have been told that the entire tumor would not be able to be removed due to its location around my carotid artery in the cavernous sinus.

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Replies to "Hi there, it’s Naomi. It’s been a journey. My meningioma was found when I started losing..."

It’s a difficult choice. I was told I should get surgery before I start getting symptoms. That I shouldn’t wait until I start getting double vision or going blind. I don’t know honestly. I had no symptoms and now I have a few.