Hi! @gerjuanna:

My broken heart aches with you upon reading your post! I am so sorry for all you've been through, praying for you at this instance, my friend...

As my own experience goes: my kind-hearted PCP recommended that I see an Occupational Physical Therapist at my post surgery visit; and the wonderful OT/PT did an excellent job to relieve my pain and swelling, and taught me to do specific exercises going forward.. Perhaps you already did all these, tried lymphatic massage and compression therapy? Unfortunately I have no personal experience on surgeries for lymphedema;( Hopefully @cindycrea may share with us her experience of Lymph node transfer surgery last year or other members that went through the surgery for lymphedema may share with us their personal experiences, please?

I pray that you'll get help to relieve the pain soon. Surely our spirits and prayers are alongside you for better health and brighter tomorrow, my friend!