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Surgery for lymphedema

Breast Cancer | Last Active: Nov 3 8:10am | Replies (21)

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@gerjuanna

Hello, I was diagnosed with breast cancer in 2020. They took 16 lymph nodes from me! My arm is swelling up and I’m feeling really bad. Starting to cry every day about my precious body… I would have NEVER recommended that amount of lymph nodes to be removed from my body… I know how hard I’ve worked to keep a healthy body, Not perfect but I try & struggle daily with being healthy.
Is there any hope for lymphedema????
I feel like fluids are invading my body.
I’m so upset as I type, tears are not stopping. I feel so violated also disgusted. This feeling is getting stronger.

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Replies to "Hello, I was diagnosed with breast cancer in 2020. They took 16 lymph nodes from me!..."

Hi! @gerjuanna:

My broken heart aches with you upon reading your post! I am so sorry for all you've been through, praying for you at this instance, my friend...

As my own experience goes: my kind-hearted PCP recommended that I see an Occupational Physical Therapist at my post surgery visit; and the wonderful OT/PT did an excellent job to relieve my pain and swelling, and taught me to do specific exercises going forward.. Perhaps you already did all these, tried lymphatic massage and compression therapy? Unfortunately I have no personal experience on surgeries for lymphedema;( Hopefully @cindycrea may share with us her experience of Lymph node transfer surgery last year or other members that went through the surgery for lymphedema may share with us their personal experiences, please?

I pray that you'll get help to relieve the pain soon. Surely our spirits and prayers are alongside you for better health and brighter tomorrow, my friend!

My heart goes out to you. I only had 3 removed and am having lots of lymphedema issues. The best advise I can give you is to keep seeking out a good massage therapist that has knowledge of lymphatic massage. I go every other week and do what I can in between. I will never stop. It is the best thing for me. I have also tried and ,when it’s not too hot , use compression. It does help. I hope you have a major turn around and find the help you need.

Add castor oil poultice to area. I have breast cancer and a broken collar bone. When nodes were removed that arm wasn't doing as well as unbroken collar bone. So I made up castor oil on soft absorbing cloth and as I watched a movie it did it's job.
I hope it helps like it did me.