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Considering treatment for M. Abscessus

MAC & Bronchiectasis | Last Active: Nov 8 11:21am | Replies (40)
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@mmccowen

I am interested if anyone with bronchiectasis and M. Abscessus has investigated the work of Graham Hatfull at U of Pittsburgh. Are there clinical trials ongoing there or a way to be seen for possible treatment? Any information would be appreciated. I am due to be seen at NJH in January for evaluation and am not keen at all for the toxic regimen of antibiotics that will be prescribed. I feel great now, but I'm sure I will not if I start on the drugs. I will be 78 in a few weeks and exercise hard almost every day, cycling, hiking and riding my horse.
Marty

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Replies to "I am interested if anyone with bronchiectasis and M. Abscessus has investigated the work of Graham..."
Sue, Volunteer Mentor | @sueinmn | Oct 31 10:14am

This article may be of interest to you.
https://pmc.ncbi.nlm.nih.gov/articles/PMC9825826/
The only caution - as with all other phage experiments with patients, subjects must be resistant to known therapies or fail them.

I am curious as to the finding of M. abscessus, yet you report you are feeling well - it is typically pretty fast-growing. Have you had more than one positive specimen?

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