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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)
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@kcengel

All of this is super interesting. I also have Lupus and a number of other auto immune issues. I first lost hearing in my right ear when I was in my mid-20s. At the time they diagnosed Mienere's Disease because I have vertigo as well. Twenty years later I lost hearing in both ears and had to wear hearing aids. Recently I had another episode of severe hearing loss and they started talking about auto immune hearing loss. I am on prednisone but they only have me on it for a short time so I am curious about the longer time some people are on it. I now think maybe it is part of Lupus and a Lupus flare. I sympathize with everyone and am glad to have found this community. Especially curious about others with lupus and other auto immune issues.

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Replies to "All of this is super interesting. I also have Lupus and a number of other auto..."
reets70 | @reets70 | Oct 31 6:20am

I have Lupus-like ailments (?) that are being treated with hydroxychloroquine for 20 years now, but recently been diagnosed with Polymyalgia Rheumatica. Prednisone has helped both ailments, with side effects, and I’m working hard to get off it ASAP. I’m 84 years old, and probably had these conditions for years unknowingly. Autoimmunity was never really investigated thoroughly when I was younger, and all I was told by doctors was that I had arthritis (in my twenties!) prednisone is a good drug if you’re not plagued by the side effects.

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