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Synovial sarcoma metastasized to lungs: Looking for connection

Posted by cootiekim @cootiekim, Oct 21 9:49am

Hi looking for connection with others going through similar cancer and treatment. I'm a 45 yr old female that got diagnosed 2022 with synovial sarcoma in my thigh. It was removed and radiation. It has now returned 2024 in my lungs. I have had 4 chemotherapy treatments so far. Doctor hasn't given me much hope but trying to stay positive. Question if I can do anything else to increase my chances.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 30 12:11pm

I'm tagging a few sarcoma members like @ellengrubb @scs23 @mcwjr189 @mrahaman, who have experience with sarcoma in the lungs (primary or metastacized).

@cootiekim, it's a punch in the gut when cancer returns. How are you doing on chemotherapy? What protocol are you on?

REPLY
mrahaman | @mrahaman | Oct 30 2:42pm

My son did chemo first, shrunk it from 7cm to 2cm, then just finished radiation on this past Monday and it remains unchanged, plus found a nearby nodule, preop is planned for next week, and we will get a date for surgery.

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