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Synovial sarcoma metastasized to lungs: Looking for connection

Sarcoma | Last Active: 6 days ago | Replies (10)
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@colleenyoung

I'm tagging a few sarcoma members like @ellengrubb @scs23 @mcwjr189 @mrahaman, who have experience with sarcoma in the lungs (primary or metastacized).

@cootiekim, it's a punch in the gut when cancer returns. How are you doing on chemotherapy? What protocol are you on?

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Replies to "I'm tagging a few sarcoma members like @ellengrubb @scs23 @mcwjr189 @mrahaman, who have experience with sarcoma..."
cootiekim | @cootiekim | Jan 18 11:30pm

I'm done with Chemo. I did a total of 6 rounds. Doxorubicin and Ifosfmide. It definitely hit me hard. Got neutropenia after every round until started on new injection that stopped my WBC from dropping. I almost died from the norovirus. Was definitely ruff and glad that is over. My scan shows no growth, no change. Kinda frustrating but a win in the cancer world

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mcwjr189 | @mcwjr189 | Jun 17 9:19am

I was diagnosed with a malignant solitary fibrous tumor in my liver on 10/21 and had it surgically removed with no other treatment. It was actually thought to be a carcinoma before surgery. On 10/23 it had metastasized to my lower right lung and I had a lung resection. On 6/24 it reappeared in my upper left lung also. Being a very rare cancer, no one knew what to do. Chemo was recommended but not my choice. Got a second opinion from Sloan Kettering on 8/24. Chemo recommended again and given 1 yr to live. Found Immunicare in Cancun and got treated for 6 weeks. feel great. Google Matt Halpern or Immunicine.com

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