Can someone help me about life after AUS 800 implant?

Posted by rodneyverrill @rodneyverrill, May 8 4:42pm

This is my first question/post so please excuse me as I a new at this. I am 58 and have had an RP in October of 2023. My prostate was 155 grams and since the procedure I have been left essentially incontinent using 7-9 large pads a day. Although this has been difficult, I feel fortunate my psa has fallen to .008, a number my doctor tells me is considered undetected.
I have tried PT with very little results, my surgeon recommended an AUS, so this coming Monday I will have surgery to have this installed. I have read many of the posts within the prostate cancer section, but I am still curious about discomfort after the 5-6 week healing process and "regular activity like swimming, golf, and more strenuous activities like mowing and lifting firewood. I am of course second guessing my decision but would be appreciative of any feedback any of you have.

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First,
I am so very sorry that you are going through this. As you probably saw in the earlier post, I've found that every person is a little different. We are within a couple of years, I didn't have any radiation but my prostate was extremely large causing damage to the sphincter muscle. All the PT I had done before and after just didn't help.
My doc was cautious about delivering all options and helping me make the decision to go with the AUS. I suspect he knew this is were we would need to end up but allowed me to make the decision.
I had the device installed in May of this year after 6 months of 9-10 pads a day. The procedure was no more painful than the robotic RP that I had.
Although it hasn't been "perfect" I think this is the best alternative for me. With very heavy coughing, or extreme lifting , I can experience a very small amount of leaking. The rest of the time, I am generally dry.
A little clunky getting use to it but it really is second nature to me know.
If you have any specific questions or would like to talk on the phone, I would be happy to do that. I can send you a private message if you like.
Take care and know there are options for getting better.
Take care and keep the faith.

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I'm stage 4 metastatic prostate cancer, Gleason 4+4. After a radical prostatectomy and then damage to my remaining urinary sphincter, all urinary control was lost and life became rather miserable, especially with the cancer. A prior AUS patient and friend suggested I have the procedure, too. I've had it about 18 months now and I'd do it again in a heartbeat. My surgeon had/has an impeccable reputation and the surgery and recovery went as planned. Bottom line, I would highly recommend this implant. Get your control, confidence and life back on schedule.

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Hi "tonytone",
I've had my AUS 800 active for 18-months. It works great! I seldom leak but do wear a small liner in my briefs, changing it once a day just in case. If there's anything in it it's usually just that 'last drop' or rare, minor leakage. However, I have had two significant leaks though I have no idea why. I know it's in good shape because I had a cystoscopy this past June for another reason.
Good luck to you and be sure you have a top notch surgeon (mine is for sure).
You've had quite a tough road so I/we-all hope this will provide some relief and peace of mind for you.

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@scullrower

We’ve had a pretty similar journey. I’ve always been troubled with urge and stress incontinence since prostatectomy, radiation, ADT, etc. with periods of relief after Botox and AUS. Now six years after AUS insertion, it’s beginning to leak even more. It has never been perfect, but if I kept my bladder relatively empty, the AUS worked fine and I’m glad to have it. I see my urologist in a few weeks to consider replacing the AUS and follow up Botox. They have helped although not perfect. Best wishes.

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You have been very helpful. I'm at Mayo in jacksonville They always gives the best scenarios. So far I have had the worst scenario. You had no infections correct? It obviously doesn't last 7 years. Do find it hard use when urinate? Did you have a small bladder capacity. I wore a clamp during radiation treatment an this was effective. After 6-9 months the Urgency and frequency increased making the clamp ineffective. I currently use a condom like cath bag made by Mens Liberty. This was life changer but still I have regulate fluid intake carefully

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No infection after AUS insertion. I did have a urinary track infection later but that was most likely due to a large kidney stone that lodged in a ureter. 👍

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