Can someone help me about life after AUS 800 implant?

First,
I am so very sorry that you are going through this. As you probably saw in the earlier post, I've found that every person is a little different. We are within a couple of years, I didn't have any radiation but my prostate was extremely large causing damage to the sphincter muscle. All the PT I had done before and after just didn't help.
My doc was cautious about delivering all options and helping me make the decision to go with the AUS. I suspect he knew this is were we would need to end up but allowed me to make the decision.
I had the device installed in May of this year after 6 months of 9-10 pads a day. The procedure was no more painful than the robotic RP that I had.
Although it hasn't been "perfect" I think this is the best alternative for me. With very heavy coughing, or extreme lifting , I can experience a very small amount of leaking. The rest of the time, I am generally dry.
A little clunky getting use to it but it really is second nature to me know.
If you have any specific questions or would like to talk on the phone, I would be happy to do that. I can send you a private message if you like.
Take care and know there are options for getting better.
Take care and keep the faith.

I'm stage 4 metastatic prostate cancer, Gleason 4+4. After a radical prostatectomy and then damage to my remaining urinary sphincter, all urinary control was lost and life became rather miserable, especially with the cancer. A prior AUS patient and friend suggested I have the procedure, too. I've had it about 18 months now and I'd do it again in a heartbeat. My surgeon had/has an impeccable reputation and the surgery and recovery went as planned. Bottom line, I would highly recommend this implant. Get your control, confidence and life back on schedule.

Hi "tonytone",
I've had my AUS 800 active for 18-months. It works great! I seldom leak but do wear a small liner in my briefs, changing it once a day just in case. If there's anything in it it's usually just that 'last drop' or rare, minor leakage. However, I have had two significant leaks though I have no idea why. I know it's in good shape because I had a cystoscopy this past June for another reason.
Good luck to you and be sure you have a top notch surgeon (mine is for sure).
You've had quite a tough road so I/we-all hope this will provide some relief and peace of mind for you.

2

You have been very helpful. I'm at Mayo in jacksonville They always gives the best scenarios. So far I have had the worst scenario. You had no infections correct? It obviously doesn't last 7 years. Do find it hard use when urinate? Did you have a small bladder capacity. I wore a clamp during radiation treatment an this was effective. After 6-9 months the Urgency and frequency increased making the clamp ineffective. I currently use a condom like cath bag made by Mens Liberty. This was life changer but still I have regulate fluid intake carefully

No infection after AUS insertion. I did have a urinary track infection later but that was most likely due to a large kidney stone that lodged in a ureter. 👍

Had aus 5 days ago, some pain lots of discomfort getting in and out of chair, car. Loos like on big black and blue soft ball between my legs. Instructed to pull pump down into scrotum for a month. Took 3 days to really feel it. Is this normal ??

So very sorry you are having to go through this. There is no good time of year whatsoever to experience this.
PLEASE, rest assure it WILL get better. My experience was very similar not that long ago and I promise things will settle down. I remember many of the other posts conveying similar sentiments.
Between the swelling and the AUS “floating” it feels like there is no way this could work. Try to be patient, the pain will pass and the device will find its resting place and become part of you. I am a little more than 7 months and it has become second nature for me.
Please reach out with any questions, I would also to speak with you on a call.
Take care and hang in there, soon you’ll be back in the swing of things.

Yes,forgot to mention getting in and out of a chair or car is the most uncomfortable time

To. fcstar98. I’m 63 and had AUS in 2021 and it will get better. Yes my Dr said ..tug the AUS down occasionally. She had a patient that didn’t tug it down and she had to operate again on him to get it down into scrotum. U will be nervous about squeezing it but it’s no problem after you get use to it. Extra cushions on chairs and get in n out of car slowly. Too much pressure on perineum where cuff is will cause brief pain. It will get better.. just take your time squeezing the pump . Keep us updated.