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Confusing Messaging about Prostate Cancer

Prostate Cancer | Last Active: Nov 3 8:02pm | Replies (76)

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@northoftheborder

So, I've already experienced the spinal deterioration — by the time my PCa was detected, I had a huge lesion on my middle spine that they had to remove with > 10 hours of emergency surgery, then replace everything they gouged out from T1 to T5 using cement and metal bars.

I'm not saying it's a picnic, but I don't want others who already have bone metastases to panic and think they're doomed. It took a while, but after 3 years I can walk again, clear snow, garden, etc. I'm not pain free — low/moderate pain is a constant companion — but I've been off nerve-pain meds since spring 2023 and am doing fine with only the occasional Tylenol before bed when I think pain might keep me awake.

Treatment has improved dramatically in the last few years, and I credit that for the fact that I'm *not* experiencing all the horrors @heavyphil and others remember friends/family going through in the past.

It's not lucky having prostate cancer, but if you have to have it, it's very lucky having it in 2024 rather than 2014 (or even 2019 to some extent). But for < diety>'s sake, make sure you take that treatment, or you'll be no better off now than you eould have been then.

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Replies to "So, I've already experienced the spinal deterioration — by the time my PCa was detected, I..."

You have been to hell and back with this disease and you are an inspiration to all of us.
The quality of your life - your life itself!- is a testament to medical progress and your own perseverance. Here’s hoping you continue to mend and enjoy your years on this earth.
Phil

L4 in my spine was treated with SBRT but MRI tests showed it had multilevel degenerative disc disease. L4 is where the nerves that control your legs reside. I was told that if it deteriorated anymore, they could use cement to support it

I know other guys with prostate cancer have had discs deteriorate to the point where they’ve disintegrated and they’ve literally become shorter. Fortunately, it did not affect their mobility.

I am 6’ 4” and was not looking forward to that as an option. It’s good to hear they were able to do so much rebuilding with your spine, gives me some comfort that they will probably be able to do something for me if mine gets worse.