Anyone taken Evinity without side affects

Posted by dreamjean1958 @dreamjean1958, Feb 14, 2023

I have a very severe case of Osteriporosis . WS on Forteo a yr . After being on Forteo. Your suppose to be put on a maintainence. I never was . My surgeon out of network. Prescribed Forteo. 2018 . I took for 13 months . My spine Dr . Or someone dropped the ball. I took calcium and Vit D 3 . My bones are now super bad . No medication was prescribed . I have fractured my foot twice in 2022 . 3 months apart. Still in a cast . Has anyone been prescribed Forteo ? Than didn’t get the drugs to maintain bone strength . I’m so upset. A yr of injections and beings the ball was dropped . I’m back at Day 1 . I’m assuming I will be prescribed EVinity . I’m a walking China Doll . Scared to take any of these meds .

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susanfalcon52 | @susanfalcon52 | Oct 28 7:01am

In reply to @rgibson123 "How long do you anticipate taking Reclast for?" + (show)

rgibson123,
I’m scheduled to have next infusion in two years - June 2026. If all goes well, maybe again in 2028? It sounds so far away. Yet, it isn’t.
I’m 72, so long range planning seems questionable.

drsuefowler | @drsuefowler | Oct 28 9:56am

In reply to @4deborahrb "I had almost daily nausea, fatigue and severe orthostatic hypotension on Tymlos. I also had 3..." + (show)

4deborahrb,
I'm curious because I have trouble with Tymlos, but I am still taking it. Did you take a medication after Tymlos to hold in gains? Do you know if it helped your bone density?

4deborahrb | @4deborahrb | Oct 28 1:12pm

In reply to @drsuefowler "4deborahrb, I'm curious because I have trouble with Tymlos, but I am still taking it. Did..." + (show)

Unfortunately I have no idea if the tymlos was working. I had just had a dexa scan prior to lumbar fusion surgery so I won’t be taking another until next May. I haven’t had any bone markers done either. Since I had been on Prolia, who knows what happened. I plan to start Evenity next week, mainly at the suggestion of the surgeon who wants all the bone building possible.

drsuefowler | @drsuefowler | Oct 28 2:02pm

In reply to @4deborahrb "Unfortunately I have no idea if the tymlos was working. I had just had a dexa..." + (show)

Good luck @4deborahrb. I hope Evenity works for you.

4deborahrb | @4deborahrb | Oct 28 2:57pm

Thanks. I just hope I can tolerate it. Do you recommend requesting bone markers since my next Dexa is not until May?

lisacorbin0411 | @lisacorbin0411 | Oct 28 3:01pm

In reply to @dreamjean1958 "Thank you for your response . My endocrinologist highly recommended Evinity for me . Have to..." + (show)

I took Evenity for a year. I was able to take the shot in my hip, back of arms or stomach.

drsuefowler | @drsuefowler | Oct 29 9:00am

In reply to @4deborahrb "Thanks. I just hope I can tolerate it. Do you recommend requesting bone markers since my..." + (show)

4deborahrb,
Bone markers would be helpful, especially before the Evenity. It would give you a starting point to compare later to see what Evenity is doing. It may be difficult to get the blood work done before next week, but I think it would be worth a try. Of course, it would also give you information on how you are doing now.

gurine | @gurine | Oct 29 7:41pm

I had no side effects from Evinity . I had a 16 3/4% improvement, more in spine where I moved from osteoporosis to osteopenia. Now I am on Alendronate and that is just fine, no side effects.

osteoresearch | @osteoresearch | Oct 30 7:05am

I’m curious if alendronate has a lot less side effects vs reclast? And is it equally effective? I start evenity end of Nov. I think I would feel better about daily/weekly dosing vs all at once infusion. Thoughts? Results on alendronate from those of you who chose this route? Also considering HRT post Evenity…..

windyshores | @windyshores | Oct 30 8:03am

In reply to @osteoresearch "I’m curious if alendronate has a lot less side effects vs reclast? And is it equally..." + (show)

After Evenity alendronate might be okay. After Prolia I have been told that Reclast is better because it coats the bones more effectively. What does your doctor suggest? I cannot take alendronate due to GERD/reflux but if I could, I would also feel better about shorter term meds.