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@mrjohnwebb

Lest we forget how this terrible disease impacts the person with dementia, here’s one from my husband John’s perspective:

The Quiet War Within

The battle stirs inside me,
silent but fierce,
a slow undoing of all I once knew.
No clash of swords,
no enemy to name,
just the steady slipping away
of the self I thought was mine to keep.

But in the stillness of this war,
there is a deeper presence.
I feel it in the spaces between words,
in the quiet moments when your hands
reach for mine.
A love beyond this body,
beyond this mind,
an unspoken knowing that
even as I fade,
something sacred holds me still.

I fight not against the world,
but against the tides inside—
memories washed out to sea,
thoughts pulled into the deep.
Yet I am not lost,
for I am held by more than these fragile thoughts.

Your love—
strong, unwavering,
is the ground beneath my feet.
I feel it in the warmth of your touch,
in the steady rhythm of your breath beside me,
and in those moments of grace
when the storm quiets,
and I remember:
I am loved. I am safe.

I endure not for myself,
but for the love that surrounds me,
for the hands that hold me steady,
for the faces that are still etched
in my soul,
even as my mind lets go.

And when the night closes in,
when the rage and confusion swell,
I turn to you,
to the love that binds us all—
something greater, deeper,
a force that will not break,
no matter how this war ends.

In this quiet war within,
I fight not to win,
but to feel,
to hold close the love
that is my strength,
my comfort,
and the only truth
that endures forever.

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Replies to "Lest we forget how this terrible disease impacts the person with dementia, here’s one from my..."

@mrjohnwebb Such beautiful poetry!!

Many thanks for sharing this gift, this poem, from John. As well as giving insight into his experience with dementia, it is a tribute to your loving care. Blessings to you both.

So beautiful. I needed this to remind me how my husband is feeling inside. I know sometimes he has to feel like everything he knows is shifting in the wrong direction. I tell him all the time it’s me and him and we are in this together… but this poem helps me to understand he has fears and he has to know I am his rock, he can always count on me to be there with him on this journey. Thank you for sharing it.

Kim, I enjoyed your beautiful poem "Strength at the Broken Places". Your husband's wonderful words captured so completely what I believe my wife of almost 61 years has tried to express to me and we both cry and hug each other for a moment of comfort.

I am a retired Edward Jones employee. and I am blessed to have you both as part of my journey, Bob C.