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Replies to "I have not, and haven't heard of this before. Thanks for the info. I'll be sure..."
Autoimmune Diseases | Last Active: Oct 29 7:56pm | Replies (48)
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I have not, and haven't heard of this before. Thanks for the info. I'll be sure to bring this up with my Rhemy at my next appointment. Sorry you are going through this so long. I am right there with you, been to the ER about 5 times now, and I'm fighting the urge more with each new symptom. My BP is kind of up and down. I've noticed periods where it was in the range of 95/65 and other times 130/95, much more rare for mine to be high, it's usually close or under normal. It may stay wherever it goes for a couple of weeks before returning to normal. I hope they find a cure some day and you can get some relief.
Replies to "I have not, and haven't heard of this before. Thanks for the info. I'll be sure..."
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Hi,
I hope it is not ANS as it is a law unto itself with your body functions.
My BP is typically 180/104 but it can drop instantly to 123/80 and I can get a few hours of work jammed into them. I usually top out with 240/140 and end up waiting all day in ED for it to do it's thing. I know I can sustain tis from prior history, but life can change at a blink of an eye, so I have to not be too stupid about it just incase. I'm on mild BP medication to try and help with the excessive migraines the high BP causes. When I work vigorously the harder I go the lower the BP drops. It is controlling my digestive system completely from top to bottom, permanently. When I look back I can pinpoint to a serious bout of campylobacter, food poisoning which left me with zero kidney function for over 18 hours and subsequently I'm now CKD. Everything started from there. As I understand it ANS can happen from serious infections or down the diabetic track which lucky me I have both.
I have had temporary paralysis from the waist down, AF of the heart, anaphylactic episodes, Scrambled brain with it not being able to decipher the corrupted signal. I feel very much like a puppet on a string. I try not to let it interfere with what I do but have little choice as go on as normal as I can. On a real bad day I just sit it out unable to function safely.
Cheers