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Unknown illness

Autoimmune Diseases | Last Active: Oct 29 7:56pm | Replies (48)

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@cheyne

Hi,
Ever been check for a neurological disorder?
A lot of your symptoms can relate Dysautonomia (ANS), and a lot of other things. It is the connection between organs and muscles to and from the brain, corrupted signals cause many of the symptoms you are having. Being random in nature it is hard to get diagnosed. Mine was picked up by the slowness of my eyes adjusting to light. Then all the symptoms started making sense. Painful stomach, abdomen cramps, blurred vision, vertigo and unsteadiness walking and a lot more, just the tip of an iceberg. I now refuse to go to ED with each chest pain, yes it could be real but usually for me it is ANS doing it's thing. My BP is uncontrollable despite medication, it does it's own thing and keeps it at the upper limits then suddenly drops to almost normal for a few hours. I can tell what sort of day it is going to be by my BP check each morning.
Worth checking it out. After 13 years of this BS I now have a handle on why the symptoms thanks to one alert ED doctor.
Cheers

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Replies to "Hi, Ever been check for a neurological disorder? A lot of your symptoms can relate Dysautonomia..."

I have not, and haven't heard of this before. Thanks for the info. I'll be sure to bring this up with my Rhemy at my next appointment. Sorry you are going through this so long. I am right there with you, been to the ER about 5 times now, and I'm fighting the urge more with each new symptom. My BP is kind of up and down. I've noticed periods where it was in the range of 95/65 and other times 130/95, much more rare for mine to be high, it's usually close or under normal. It may stay wherever it goes for a couple of weeks before returning to normal. I hope they find a cure some day and you can get some relief.