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← Return to Ending antibiotics for MAC
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i am glad to find someone who stayed on meds for keeping Mac under control. if you don't mind sharing meds info? I am new to these chat boards. My spouse has MAC for about 14 yrs! He's been on sev. antibiotics almost as long. Also on a probiotic same amount of time. He also has COPD. any info/research or experiences will be appreciated! Bless you all
Replies to "i am glad to find someone who stayed on meds for keeping Mac under control. if..."
Welcome to Mayo Connect. I’m sorry you need to be here, but believe you will find very helpful information from members who have been walking this same road as your husband.
I have bronchiectasis and was thought to have MAC based on CT’s, but went to Mayo and my bronchoscopy results were negative. I’m here to try to keep it that way.
You mentioned that your hubby can’t do the breathing treatments and you weren’t sure about adding water to his lungs. If you’re speaking about the 7% saline, several members, including me, have found Dr McShane’s presentation on on airway clearance quite helpful. It includes good info on advantage of hypertonic saline as well as other airway clearance techniques.
https://m.youtube.com/watch?v=L-EHohMe7II
Note-we can’t provide medical advice since we aren’t providers and can only share our experiences. Hypertonic saline should be used only with advice of docs who know the patient’s medical issues and would be used cautiously, if at all, if a patient has any signs of heart failure.
Please feel free to post questions. Searching the threads also is also helpful. As you see from other posts, there’s a lot of experience here.
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Of course. I'm on Azithromycin, Ethambutol, Rifabutin, Clofazimine, inhaled Arikayce, 2 breathing treatments per day consistent of Levalbuterol and 3% saline solution.