Well. I’m a good 18 months in since my original post. I saw the neurologist in May 23, and while he did a basic neurological check and listened carefully to my story, he didn’t actually examine my twitches or look at my legs at all! He did however, immediately rule out anything sinister. He simply said it would likely wax and wane and hopefully go away, and then made it clear he felt it was psychological. While I appreciated the confidence it wasn’t sinister, I was quite miffed at the “it’s all in your head”.
Since then, it has largely remained. It does indeed wax and wane, largely because you get distracted, and it is certainly exacerbated by exercise and poor sleep but I have struggled to get to the bottom of triggers. Despite my scepticism, I even saw a therapist for 6 months but other than a nice chat, it made no impact on the twitches. I still believe it is not psychological given during periods of genuine stress ie moving house, work, it does not seem to get any worse nor does it improve with rest and holidays etc.
I contracted Covid again 3 months ago and I have to say it is definitely a lot worse since then.
I can only deduce it is viral triggered and there are lasting effects on the nervous system from Covid and each time it gets worse.
Even now, studies are starting to shed light on the brain impact and it’s troubling.
So I remain frustrated, though I have to say comforted in an odd way that after nearly 2 years of twitching I have not developed any worrying weakness or atrophy which I take to be a very positive thing. And hope it stays that way!
Good luck to all suffering x