I was diagnosed with UPS in April 2023. I had noticed a lump forming on my upper left arm between my tricep and my elbow. My local doctor as well as a radiologist told me it was only a lipoma - nothing to be concerned about. The lump continued growing and bruising my skin - but it never was painful. Finally, some time in March, I grew tired of looking at it, so I booked an appointment with a local surgeon to remove it. It was only after he ordered a biopsy of the tumor that we found out it was Sarcoma.
My sister-in-law is a nurse in Nashville, TN, and she insisted that I go to a sarcoma research facility for treatment. That's how I ended up going to Mayo Clinic in Rochester, MN. I did 3 weeks of radiation in June, and we went back in late July for surgery to get clear margins. I had a skin graft to cover the whole that was cut in my upper arm. After 10 1/2 weeks at home (without driving) wearing a 30 degree splint, I was finally given the green light for physical therapy. Yayyy!! It took about 2 months to get my arm flexibility and decent strength back. I am so thankful to God for the care I received at Mayo Clinic. I am pretty much back to normal flexibility and strength now.