I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET. Metastasis to my liver and lymph nodes. I am non surgical candidate as my primary tumor is encapsulated in the mesentery. I started monthly lanreotide shots in August of 2023. I was primarily asymptomatic but presented with what appeared to be a gallbladder attack. With further testing the primary NET was found. All in all my treatments are going well. It is hard to determine if the symptoms I am experiencing are related to the disease, the treatment or self inflicted if I eat incorrectly. I have been utilizing this resource for quite sometime and find it very informative and supportive. I am being treated at Dana Farber/Brigham & Women's in Boston.